Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences, University of Oxford, Oxford, United Kingdom.
Endless Possibilities Initiative, Fraser, Colorado, USA.
Pain Med. 2021 Jun 4;22(6):1333-1344. doi: 10.1093/pm/pnaa373.
There is a large body of research exploring what it means for a person to live with chronic pain. However, existing research does not help us understand what it means to recover. We aimed to identify qualitative research that explored the experience of living with chronic pain published since 2012 and to understand the process of recovery.
A synthesis of qualitative research using meta-ethnography.
We used the seven stages of meta-ethnography. We systematically searched for qualitative research, published since 2012, that explored adults' experiences of living with, and being treated for, chronic pain. We used constant comparison to distill the essence of ideas into themes and developed a conceptual model.
We screened 1,328 titles and included 195 studies. Our conceptual model indicates that validation and reconnection can empower a person with chronic pain to embark on a journey of healing. To embark on this journey requires commitment, energy, and support.
The innovation of our study is to conceptualize healing as an ongoing and iterating journey rather than a destination. Health interventions for chronic pain would usefully focus on validating pain through meaningful and acceptable explanations; validating patients by listening to and valuing their stories; encouraging patients to connect with a meaningful sense of self, to be kind to themselves, and to explore new possibilities for the future; and facilitating safe reconnection with the social world. This could make a real difference to people living with chronic pain who are on their own healing journeys.
有大量研究探讨一个人患有慢性疼痛意味着什么。然而,现有研究并不能帮助我们理解恢复的意义。我们旨在确定自 2012 年以来探索患有慢性疼痛的人生活经历并了解恢复过程的定性研究。
使用元民族学对定性研究进行综合。
我们使用了元民族学的七个阶段。我们系统地搜索了自 2012 年以来发表的探索成年人患有慢性疼痛和接受慢性疼痛治疗的经验的定性研究。我们使用恒定性比较将思想的本质提炼成主题,并开发了一个概念模型。
我们筛选了 1328 个标题,纳入了 195 项研究。我们的概念模型表明,验证和重新联系可以赋予患有慢性疼痛的人踏上治愈之旅的力量。踏上这段旅程需要承诺、精力和支持。
我们研究的创新之处在于将治愈视为一个持续迭代的旅程,而不是一个目的地。慢性疼痛的健康干预措施可以通过有意义和可接受的解释来验证疼痛;通过倾听和重视患者的故事来验证患者;鼓励患者与有意义的自我意识联系起来,善待自己,探索未来的新可能性;并促进与社会世界的安全重新联系。这可能会对正在进行自我治愈之旅的慢性疼痛患者产生真正的影响。