Ege University Faculty of Nursing, Izmir, Turkey.
Dokuz Eylül University Faculty of Nursing, Izmir, Turkey.
Clin Nurs Res. 2021 Jul;30(6):790-798. doi: 10.1177/10547738211002354. Epub 2021 Mar 25.
This study aims to provide a closer examination of the problems experienced by individuals with pemphigus vulgaris with their eyes and experiences. This is a phenomenological study. The study population was completed with eight people with pemphigus vulgaris who applied to the dermatology clinic of a university hospital in a metropolis between September 2019 and March 2020. The interviews were transcribed and analyzed using phenomenological methods. Three main themes emerged and nine supporting sub-themes were identified. The main themes are (a) the physical problems they are experiencing now, (b) the psychological difficulties they are feeling now, and (c) intense future anxiety about the process and the future. This study will increase the understanding of the lived experiences of pemphigus vulgaris patients, increase the awareness of each nurse about these patients and will be able to provide better quality care to individuals with pemphigus vulgaris.
本研究旨在更深入地探讨天疱疮患者眼部问题及相关体验。这是一项现象学研究。研究对象为 2019 年 9 月至 2020 年 3 月期间在大都市一所大学附属医院皮肤科就诊的 8 名天疱疮患者。采用现象学方法对访谈内容进行转录和分析。研究结果呈现出 3 个主要主题和 9 个支持性副主题。主要主题包括：（a）他们目前正在经历的身体问题；（b）他们目前的心理困难；（c）对疾病进程和未来的强烈焦虑。本研究将增进对天疱疮患者生活体验的理解，提高每位护士对这些患者的认识，并为天疱疮患者提供更好的护理质量。
