Oxford Craniofacial Unit, Oxford University Hospitals NHS Foundation Trust, John Radcliffe Hospital, Oxford, UK.
J Craniofac Surg. 2021 Sep 1;32(6):2035-2040. doi: 10.1097/SCS.0000000000007593.
Patients, parents, and carers are increasingly using social media to access and contribute to health information. There are currently 3.484 billion active social media users. Instagram is a primarily visual social media platform for sharing photographs and videos with currently over one billion monthly active users. Limited research has investigated the use of Instagram in healthcare contexts including plastic surgery, and in the treatment of specific conditions, such as fibromyalgia and scoliosis. This study aimed to investigate the use of Instagram in relation to craniofacial surgery.
The authors investigated the use of 12 Instagram craniofacial surgery-related hashtags. Quantitative and qualitative data were collected for each of the "top" nine posts associated with each hashtag. Duplicate posts, posts not in English and those not relevant to craniofacial surgery were excluded.Thematic analysis was then used to qualitatively evaluate the captions and comments of each of the nine "top" posts associated with each hashtag.
A total number of 151,738 posts were identified using the 12 hashtags queried in the present study, with #craniofacial being the most popular hashtag (87% of posts). Parents (n = 25, 33%) and surgeons (n = 25, 33%) were responsible for the majority of posts. A heterogenous group were responsible for the remaining 34% of posts.Results indicated that parents and surgeons posted significantly different images (chi-squared with Yates correlation is 25.0519, P < 0.00001). Parents' posts were predominantly images of their child/patients (n = 24) compared to posts about patients by surgeons (n = 6). Posts by surgeons were predominantly images of professionals (n = 14) compared to images of professionals posted by parents (n = 1).Results of qualitative analysis of captions of posts indicated a significant difference in themes that emerged between parents and surgeons; with surgeons largely using Instagram for information giving, and parents for sharing of experiences (chi-square (n = 108) = 40.83, P < 0.00001).There was a significant difference (two-tailed t test, P = 0.002) in engagement (measured by the number of likes on posts) on posts by parents (mean = 3778) compared to posts by surgeons (mean = 135.4).
Results indicate that craniofacial-surgery related posts on Instagram provide a medium to allow individuals and families with rare disorders to connect and share their experiences. The use of Instagram to share information about craniofacial abnormalities via Instagram has the potential to be used by healthcare professionals to educate and support patients and families.
患者、家长和照护者越来越多地使用社交媒体来获取和提供健康信息。目前有 34.84 亿活跃的社交媒体用户。Instagram 是一个主要用于分享照片和视频的视觉社交媒体平台，目前拥有超过 10 亿月活跃用户。有限的研究调查了 Instagram 在医疗保健领域的使用情况，包括整形手术，以及在治疗特定疾病（如纤维肌痛和脊柱侧凸）方面的使用情况。本研究旨在调查与颅面外科相关的 Instagram 使用情况。
作者调查了 12 个与颅面外科相关的 Instagram 标签的使用情况。对与每个标签相关的前 9 个“热门”帖子的每一个帖子都收集了定量和定性数据。排除重复帖子、非英语帖子和与颅面外科无关的帖子。然后使用主题分析对与每个标签相关的前 9 个“热门”帖子的标题和评论进行定性评估。
本研究使用 12 个标签共检索到 151738 个帖子，#颅面外科是最受欢迎的标签（87%的帖子）。家长（n=25，33%）和外科医生（n=25，33%）是大多数帖子的发布者。剩下的 34%的帖子由一个异质群体负责。结果表明，家长和外科医生发布的照片明显不同（卡方检验与 Yates 校正的自由度为 25.0519，P<0.00001）。家长的帖子主要是他们的孩子/患者的照片（n=24），而外科医生的帖子则主要是关于患者的（n=6）。外科医生的帖子主要是专业人士的照片（n=14），而家长的帖子则主要是专业人士的照片（n=1）。对帖子标题的定性分析结果表明，家长和外科医生的主题差异显著；外科医生主要使用 Instagram 提供信息，而家长则主要分享经验（卡方检验（n=108）=40.83，P<0.00001）。家长帖子的参与度（通过帖子点赞数衡量）显著高于外科医生帖子（双侧 t 检验，P=0.002），家长帖子的点赞数平均值为 3778，而外科医生帖子的点赞数平均值为 135.4。
结果表明，Instagram 上与颅面外科相关的帖子为患有罕见疾病的个人和家庭提供了一个连接和分享他们经验的平台。通过 Instagram 分享颅面异常信息有可能被医疗保健专业人员用于教育和支持患者和家庭。
