Faculty of Health Science, University of Southern Denmark, Odense, Denmark.
Department of Gastroenterology, Oslo University Hospital, Oslo, Norway.
Scand J Gastroenterol. 2021 May;56(5):545-551. doi: 10.1080/00365521.2021.1901308. Epub 2021 Mar 26.
Patients with inflammatory bowel diseases (IBD) have experienced changes to the routine management because of the SARS-CoV-2 pandemic. The aim of this study was to examine patients with IBD's adherence to the restrictions imposed by society and the hospital, worries and concerns regarding medical treatment and clinical follow-up under the pandemic.
IBD patients (≥18 years) at the outpatient clinic at Oslo University Hospital were included and answered a self-report questionnaire including concerns regarding their disease, medical therapy and follow-up during SARS-CoV-2 pandemic.
In total, 522 IBD patients were included, 317 Crohn's disease, 205 ulcerative colitis, 386 patients <50 years. Eighteen percent were in obligatory quarantine, and more often patients <50 years compared to patients ≥50 years. Five patients tested positive to SARS- CoV-2. A higher proportion <50 years reported worries for their medical treatment and risk of COVID -19 disease compared to those ≥50 years. Forty percent avoided family, two-thirds avoided friends, and 4% cancelled their scheduled consultation at the hospital. The hospital changed physical consultation to telephone consultation for 15% of the patients. The preferred follow-up was physical consultation. A higher proportion of the patients <50 years preferred telephone consultation compared to those ≥50 years. Four out of five IBD patients were satisfied with the information about their IBD and COVID-19.
SARS-CoV-2 pandemic affects the daily lives for patients with IBD. It is important to develop evidence-base guidelines in follow-up and treatment, as well as patient information about COVID-19and IBD.
由于 SARS-CoV-2 大流行，患有炎症性肠病（IBD）的患者经历了常规治疗管理的变化。本研究旨在研究 IBD 患者对社会和医院规定的限制的遵守情况，以及对大流行期间医疗和临床随访的担忧。
在奥斯陆大学医院的门诊诊所，我们纳入了 IBD 患者（≥18 岁），并让他们回答一份自我报告问卷，其中包括对疾病、药物治疗和 SARS-CoV-2 大流行期间临床随访的担忧。
共纳入 522 例 IBD 患者，其中 317 例克罗恩病，205 例溃疡性结肠炎，386 例患者<50 岁。18%的患者处于强制隔离状态，<50 岁的患者比≥50 岁的患者更常见。有 5 例患者 SARS-CoV-2 检测呈阳性。<50 岁的患者比≥50 岁的患者更担心他们的医疗和 COVID-19 疾病风险。40%的患者避免了家庭聚会，三分之二的患者避免了朋友聚会，还有 4%的患者取消了在医院的预约咨询。医院将 15%的患者的物理咨询改为电话咨询。患者首选的随访方式是物理咨询。<50 岁的患者比≥50 岁的患者更倾向于电话咨询。五分之四的 IBD 患者对他们的 IBD 和 COVID-19 信息感到满意。
SARS-CoV-2 大流行影响了 IBD 患者的日常生活。制定关于 COVID-19 和 IBD 的随访和治疗的循证指南，以及患者信息，这一点很重要。
