Perinatal HIV Research Unit, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.
Programme in Demography and Population Studies, University of the Witwatersrand, Schools of Public Health and Social Sciences, Johannesburg, South Africa.
Curr HIV/AIDS Rep. 2021 Jun;18(3):237-246. doi: 10.1007/s11904-021-00549-y. Epub 2021 Mar 26.
eHealth tools are increasingly utilized for communication with patients. Although efficacious and cost-effective, these tools face several barriers that challenge their ethical use in sexual health. We reviewed literature from the past decade to pick illustrative studies of eHealth tools that deliver results of laboratory tests for sexually transmitted infections, including the human immunodeficiency virus, as well as partner notifications. We describe ethical implications for such technologies.
Our review found that despite widespread research on the use of eHealth tools in delivering laboratory results and partner notifications, these studies rarely measured or reported on the ethical implications. Such implications can be organized according to the four major principles in bioethics: beneficence, patient autonomy, non-maleficence, and justice. The beneficence of eHealth typically measures efficacy in comparison to existing standards of care. Patient autonomy includes the ability to opt in or out of eHealth tools, right-based principles of consent, and sovereignty over healthcare data. To adhere to the principle of non-maleficence, relevant harms must be identified and measured-such as unintentional disclosure of illness, sexual orientation, or sexual activity. Justice must also be considered to accommodate all users equally, irrespective of their literacy level, with easy-to-use platforms that provide clear messages. Based on case studies from this review, we developed a list of recommendations for the ethical development and evaluation of eHealth platforms to deliver STI/HIV results to patients and notifications to partners.
电子健康工具越来越多地用于与患者沟通。尽管这些工具有效且具有成本效益,但它们面临着一些障碍,这些障碍挑战了它们在性健康方面的道德使用。我们回顾了过去十年的文献,挑选了一些具有代表性的研究,这些研究使用电子健康工具来提供性传播感染(包括人类免疫缺陷病毒)的实验室检测结果和性伴侣通知。我们描述了这些技术的伦理含义。
我们的综述发现,尽管广泛研究了电子健康工具在提供实验室结果和性伴侣通知方面的应用,但这些研究很少测量或报告伦理影响。这些影响可以根据生物伦理学的四大原则来组织:有益、患者自主性、不伤害和公正。电子健康的有益性通常通过与现有护理标准进行比较来衡量疗效。患者自主性包括选择是否使用电子健康工具的能力、基于权利的同意原则以及对医疗保健数据的主权。为了遵守不伤害原则,必须识别和衡量相关危害,例如疾病、性取向或性活动的无意披露。还必须考虑公正,以平等对待所有用户,无论其文化程度如何,使用易于使用的平台提供清晰的信息。基于本综述的案例研究,我们制定了一系列关于电子健康平台的伦理开发和评估的建议,以向患者提供性传播感染/艾滋病毒检测结果,并向性伴侣发出通知。