Roe Allison K, Eppler Sara L, Shapiro Lauren M, Satteson Ellen S, Yao Jeffrey, Kamal Robin N
Department of Orthopaedic Surgery, VOICES Health Policy Research Center, Stanford University, Redwood City, CA.
Department of Orthopaedic Surgery, VOICES Health Policy Research Center, Stanford University, Redwood City, CA.
J Hand Surg Am. 2021 Sep;46(9):818.e1-818.e6. doi: 10.1016/j.jhsa.2021.02.001. Epub 2021 Mar 26.
Hand conditions are common, and often require a discussion of the tradeoffs of different treatment options. Our goal was to evaluate whether providing patients with a Question Prompt List (QPL) for common hand conditions improves their perceived involvement in care compared with providing patients with 3 generic questions.
We performed a prospective, single-center, pragmatic randomized controlled trial. We created a QPL pamphlet for patients with common hand conditions. New patients with common hand conditions were enrolled between April 2019 and July 2019 and were randomized into either the QPL group (with 35 hand-specific questions) or the AskShareKnow group (3 generic questions: [1] What are my options? [2] What are the possible benefits and harms of those options? [3] How likely are each of these benefit and harms to happen to me?). Both groups received the questions prior to meeting with their surgeon. We used the Perceived Involvement in Care Scale (PICS), a validated instrument designed to evaluate patient participation in decision-making, as our primary outcome. The maximum PICS score is 13, and a higher score indicates higher perceived involvement.
One hundred twenty-six patients participated in the study, with 63 patients in the QPL group and 63 patients in the AskShareKnow group. The demographic characteristics were similar in the 2 groups. The mean AskShareKnow group PICS score was 8.3 ± 2.2 and the mean QPL PICS score was 7.5 ± 2.8, which was not deemed clinically significant.
The QPLs do not increase perceived involvement in care in patients with hand conditions compared with providing patients with 3 generic questions.
Various approaches have been evaluated to help improve patient involvement in their care. In hand surgery, 3 generic questions were no different than a lengthy QPL with respect to patient involvement in their care.
手部疾病很常见,通常需要对不同治疗方案的利弊进行讨论。我们的目标是评估,与向患者提供3个通用问题相比,为常见手部疾病患者提供问题提示清单(QPL)是否能提高他们在医疗过程中的参与感。
我们进行了一项前瞻性、单中心、实用性随机对照试验。我们为常见手部疾病患者制作了一份QPL手册。2019年4月至2019年7月期间,新诊断为常见手部疾病的患者入组,并随机分为QPL组(有35个针对手部疾病的问题)或“询问-分享-了解”组(3个通用问题:[1] 我的选择有哪些?[2] 这些选择可能的益处和危害是什么?[3] 这些益处和危害发生在我身上的可能性有多大?)。两组患者在与外科医生会面之前都收到了这些问题。我们使用“医疗过程参与感量表”(PICS)作为主要结局指标,这是一种经过验证的用于评估患者参与决策的工具。PICS的最高分为13分,分数越高表明参与感越强。
126名患者参与了研究,QPL组和“询问-分享-了解”组各有63名患者。两组的人口统计学特征相似。“询问-分享-了解”组的PICS平均得分为8.3±2.2,QPL组的PICS平均得分为7.5±2.8,差异无临床意义。
与向患者提供3个通用问题相比,QPL并不能提高手部疾病患者在医疗过程中的参与感。
已经评估了各种方法来帮助提高患者在医疗过程中的参与度。在手外科中,就患者对医疗过程的参与度而言,3个通用问题与一份冗长的QPL并无差异。