Speech and Language Therapy, Lancashire Teaching Hospitals NHS Foundation Trust, Preston, England (Ms Edney); and School of Healthcare, University of Leeds, Leeds, England (Prof McHugh).
Adv Neonatal Care. 2023 Jun 1;23(3):246-253. doi: 10.1097/ANC.0000000000000830. Epub 2021 Mar 25.
Parent involvement in neonatal care is beneficial to families and infant outcomes. Few studies have explored parental experiences of neonatal therapy participation.
This study had 2 purposes: (1) to explore parental attitudes and beliefs about participating in neonatal therapies and (2) to identify barriers and facilitators to parental involvement and suggest ways to optimize neonatal therapy services.
The study design and data analysis were informed by constructivist grounded theory methods. Semistructured telephone interviews were conducted with 9 mothers of children who had received neonatal therapy.
After an early period of fear and powerlessness, a transition point occurred where the survival of their infant became more certain and parents were able to consider the future. At this point, participation in therapies was perceived to be more relevant. Therapy participation was experienced as a means of regaining autonomy and control in a context of trauma, but parents encountered barriers related to accessing therapists and external demands on their time.
Parental participation is best facilitated by frequent and flexible access to neonatal therapists and staffing levels should reflect this. On commencing therapy, parents should be given therapists' contact details to maximize opportunities for face-to-face encounters.
Future research is needed to explore parental readiness to participate in therapies in the neonatal intensive care unit. Research exploring the impact of parental involvement in therapies over a longer time frame would be beneficial. Finally, there is a need to determine efficacy and effectiveness of parent-delivered neonatal therapies.
家长参与新生儿护理对家庭和婴儿的结果都有益处。很少有研究探索过父母参与新生儿治疗的体验。
本研究有两个目的：（1）探讨父母对参与新生儿治疗的态度和信念；（2）确定父母参与的障碍和促进因素，并提出优化新生儿治疗服务的方法。
研究设计和数据分析受到建构主义扎根理论方法的启发。对 9 位有孩子接受过新生儿治疗的母亲进行了半结构化电话访谈。
在经历了早期的恐惧和无助之后，出现了一个转折点，即婴儿的生存变得更加确定，父母能够考虑未来。此时，参与治疗被认为更相关。治疗参与被视为在创伤背景下重新获得自主权和控制的一种手段，但父母遇到了与接触治疗师和外部时间需求相关的障碍。
通过频繁和灵活地接触新生儿治疗师，可以最好地促进父母的参与，人员配备水平应反映这一点。在开始治疗时，应向父母提供治疗师的联系方式，以最大限度地增加面对面接触的机会。
需要进一步研究父母在新生儿重症监护病房参与治疗的准备情况。探索父母参与治疗在更长时间内的影响的研究将是有益的。最后，需要确定父母提供的新生儿治疗的疗效和有效性。
