Karabulutlu Elanur Yılmaz, Turan Gülcan Bahçecioğlu, Yanmış Safiye
Department of Nursing, Faculty of Health Sciences, Erzurum Technical University, Erzurum, Turkey.
Department of Nursing, Faculty of Health Sciences, Fırat University, Elazığ, Turkey.
Palliat Support Care. 2022 Feb;20(1):30-37. doi: 10.1017/S1478951521000213.
Caregivers have a great role in palliative care. Considering the difficult process of palliative care, the caregiver undertakes an extra burden with the responsibility of the patient. This study was carried out to evaluate the care burden and preparedness of caregivers who provide care for palliative care patients.
This study was conducted in the palliative care unit of a state hospital in Turkey between January and May 2019. No sample was selected in the study, and the study was carried out with individuals who were hospitalized in the palliative care unit and who volunteered to participate in the study between the specified dates. The data were collected with Patient Relative Questionnaire Form, Burden Interview, and Preparedness for Caregiving Scale.
The average Burden Interview score was found as 33.6, SD 13.03 in the study. Patient relatives perceived the patients they cared for as a burden at moderate levels. The Preparedness for Caregiving score average was found as 18.55, SD 6.83. It was found that patient relatives were moderately prepared to undertake the role of caregiver. It was found that care burden decreased as preparedness for caregiving increased and burden increased as preparedness for caregiving decreased (p = 0.001).
As a result of the study, it was found that caregivers of palliative patients had the moderate levels of care burden and preparedness for caregiving. It was found that as the preparedness levels of caregivers increased, their burdens decreased. Accordingly, it is important that nurses will plan nursing interventions by considering the factors that affect the care burden and preparedness of caregivers.
照护者在姑息治疗中发挥着重要作用。鉴于姑息治疗过程艰难，照护者承担着额外的患者护理责任负担。本研究旨在评估为姑息治疗患者提供照护的照护者的照护负担及准备情况。
本研究于2019年1月至5月在土耳其一家国立医院的姑息治疗科开展。本研究未进行抽样，研究对象为在指定日期期间入住姑息治疗科且自愿参与研究的住院患者。通过患者亲属调查问卷表、照护负担访谈及照护准备量表收集数据。
本研究中照护负担访谈平均得分为33.6，标准差为13.03。患者亲属认为他们所照护的患者给他们带来的负担处于中等水平。照护准备得分平均为18.55，标准差为6.83。研究发现患者亲属承担照护者角色的准备程度处于中等水平。研究发现，照护负担随照护准备程度的增加而降低，随照护准备程度的降低而增加（p = 0.001）。
研究结果表明，姑息治疗患者的照护者照护负担及照护准备处于中等水平。研究发现，随着照护者准备程度的提高，其负担减轻。因此，护士在规划护理干预措施时考虑影响照护者照护负担和准备情况的因素很重要。
