Turan Gülcan Bahcecioglu, Dayapoğlu Nuray, Özer Zülfünaz
Department of Nursing, Faculty of Health Sciences, Fırat University, Elazığ, Turkey.
Faculty of Nursing, Atatürk University, Erzurum, Turkey.
Epilepsy Behav. 2021 Oct 27;124:108370. doi: 10.1016/j.yebeh.2021.108370.
This study was conducted to evaluate the care burden and caregiving preparedness in caregivers of patients with epilepsy.
This descriptive, cross-sectional study evaluated the caregivers of patients with epilepsy who were referred to the neurology outpatient clinic of a university hospital in Erzurum, eastern Turkey, between February 2020 and February 2021. The study was carried out with 147 volunteers among the patients with epilepsy who were referred to the neurology outpatient clinic between the specified dates. The data were collected with Caregiver Question Form, the Brief Disability Questionnaire (BDQ), the Burden Interview (BI), and the Preparedness for Caregiving Scale (PCS).
The mean BI score of the caregivers who participated in the study was 43.14 ± 18.08, their mean PCS score was 14.12 ± 7.76, and their mean BDQ score was 10.53 ± 4.65. In the regression analysis conducted, it was found that being married, having little knowledge of patient care, undertaking all of the roles in caregiving and having caregiving duration of 24 months and longer had a negative effect on PCS total score, while having an undergraduate degree and higher had a positive significant effect. It was found that having an undergraduate degree and higher had a negative effect on BI total score, while all of the roles undertaken in caregiving had a positive significant effect on BI total score. It was found that PCS had a negative significant effect on BI total score (p < 0.001).
Caregivers of patients with epilepsy had a moderate level of burden and caregiving preparedness, and the patients cared for had a moderate level of disability. Caregiver burden increased as disability of patients with epilepsy and the tasks undertaken in caregiving increased, whereas burden decreased as caregiver education and caregiving preparedness increased.
本研究旨在评估癫痫患者照料者的照料负担及照料准备情况。
本描述性横断面研究对2020年2月至2021年2月期间转诊至土耳其东部埃尔祖鲁姆一家大学医院神经内科门诊的癫痫患者的照料者进行了评估。在指定日期之间转诊至神经内科门诊的癫痫患者中，选取147名志愿者参与了本研究。通过照料者问题表、简易残疾问卷（BDQ）、照料负担访谈（BI）和照料准备量表（PCS）收集数据。
参与研究的照料者的平均BI评分为43.14±18.08，平均PCS评分为14.12±7.76，平均BDQ评分为10.53±4.65。在进行的回归分析中发现，已婚、对患者护理知识了解较少、承担所有照料角色以及照料时长为24个月及更长时间对PCS总分有负面影响，而拥有本科学历及以上则有显著的积极影响。发现拥有本科学历及以上对BI总分有负面影响，而承担的所有照料角色对BI总分有显著的积极影响。发现PCS对BI总分有显著的负面影响（p<0.001）。
癫痫患者的照料者有中等程度的负担和照料准备，且所照料的患者有中等程度的残疾。随着癫痫患者残疾程度和照料任务的增加，照料者负担加重，而随着照料者教育程度和照料准备的提高，负担减轻。
