Department of Health Research, 4396Lancaster University, Lanchester, UK.
Department of Health Research, 4396Lancaster University, Lancaster, UK.
Dementia (London). 2021 Oct;20(7):2597-2617. doi: 10.1177/1471301221997291. Epub 2021 Mar 31.
As the number of people with dementia increases, more families will be affected by the daily challenges of providing effective support, given its current incurable status. Once individuals are diagnosed with dementia, the earlier they access support, the more effective the outcome. However, once people receive a diagnosis, how they make sense of their dementia can impact on their help-seeking intentions. Exploring the illness beliefs of people with dementia and their caregivers and this relationship to help seeking may identify how best to facilitate early support. To systematically obtain and critically review relevant studies on the relationship between illness perceptions and help seeking of people with dementia and their caregivers. A systematic search was conducted and included both quantitative and qualitative studies. The initial search was conducted in October 2018, with an adjacent search conducted in April 2020. A total of 14 articles met the inclusion criteria. Conceptually, the studies examined the association of illness perceptions and help-seeking post-diagnosis and revealed that people living with dementia and their caregivers sought help when symptoms became severe. Components of illness perceptions revealed that lack of knowledge, cultural beliefs, complexity of the healthcare system, threat to independence and acceptance were identified as major factors for delaying help seeking. Although research interest in the area of illness perceptions and their impact on help seeking for dementia is increasing, further work is needed to understand this area, particularly regarding the influence of the relationship between the person with dementia and their caregiver.
随着痴呆症患者人数的增加，由于其目前无法治愈的状态，越来越多的家庭将受到为患者提供有效支持的日常挑战的影响。一旦个体被诊断出患有痴呆症，他们越早获得支持，效果就越好。然而，一旦人们被诊断出患有痴呆症，他们如何理解自己的病情会影响他们寻求帮助的意愿。探索痴呆症患者及其照顾者的疾病信念及其与寻求帮助的关系，可能有助于确定如何最好地促进早期支持。系统地获取和批判性地回顾关于痴呆症患者及其照顾者的疾病认知与寻求帮助之间关系的相关研究。进行了系统搜索，包括定量和定性研究。最初的搜索于 2018 年 10 月进行，2020 年 4 月进行了相邻搜索。共有 14 篇文章符合纳入标准。从概念上讲，这些研究检查了疾病认知与诊断后寻求帮助之间的关联，结果表明，痴呆症患者及其照顾者在症状加重时会寻求帮助。疾病认知的组成部分表明，缺乏知识、文化信仰、医疗保健系统的复杂性、对独立性的威胁和接受是导致寻求帮助延迟的主要因素。尽管人们对疾病认知及其对痴呆症寻求帮助的影响的研究兴趣日益增加，但仍需要进一步研究以了解这一领域，特别是关于痴呆症患者与其照顾者之间关系的影响。
