Latulippe K, Guay M, Giguère A, Provencher V, Sévigny A, Poulin V, Dubé V, Éthier S, Carignan M, Giroux D
Département d'études sur l'enseignement et l'apprentissage, université Laval, Québec, QC, Canada; Centre d'excellence sur le vieillissement de Québec (CEVQ), Québec, QC, Canada.
École de réadaptation, université de Sherbrooke, Sherbrooke, QC, Canada; Centre de recherche sur le vieillissement, Sherbrooke, QC, Canada.
Rev Epidemiol Sante Publique. 2019 Feb;67(1):43-49. doi: 10.1016/j.respe.2018.10.002. Epub 2018 Nov 11.
Caregivers play an essential role in maintaining home care for elderly people with dementia. However, it is difficult for caregivers to target their own needs as well as those of the person with neurocognitive disorders they support on a daily basis. Identifying the needed resources can also be difficult. In order to better assist caregivers in identifying resources needed to support their role, this study aims to understand the factors that influence their help-seeking process.
This qualitative and descriptive study focuses on the point of view of the main people affected by this problem: caregivers. Eleven caregivers of elderly people with dementia living at home were recruited by convenience sampling. Semi-structured interviews were conducted, and the data were analyzed according to Mast's typology.
The factors influencing caregivers help-seeking process were categorized into five themes: 1) service-related (e.g. wait times); 2) personal (e.g. feeling intrusive); 3) experiential (e.g. positive use of a service); 4) relational (e.g. rejection of the elder), and 5) informational (e.g. directed to the right service).
Caregivers face many challenges in their help-seeking process and want to be more proactively accompanied in a way adapted to their changing needs.
照顾者在为患有痴呆症的老年人提供家庭护理方面发挥着至关重要的作用。然而，照顾者很难在满足自身需求的同时，兼顾他们日常所照顾的患有神经认知障碍者的需求。确定所需资源也可能很困难。为了更好地帮助照顾者确定支持其角色所需的资源，本研究旨在了解影响他们寻求帮助过程的因素。
这项定性描述性研究聚焦于受该问题影响的主要人群即照顾者的观点。通过便利抽样招募了11位家中患有痴呆症老人的照顾者。进行了半结构化访谈，并根据马斯的类型学对数据进行了分析。
影响照顾者寻求帮助过程的因素分为五个主题：1）与服务相关的（如等待时间）；2）个人的（如感觉冒昧）；3）经验性的（如对某项服务的积极使用）；4）关系性的（如对老年人的拒绝），以及5）信息性的（如被指引到正确的服务机构）。
照顾者在寻求帮助的过程中面临诸多挑战，希望以适应其不断变化需求的方式得到更积极的陪伴。
