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麻风病患者的治疗历程:寻求护理过程中的途径、斗争与挑战。

Therapeutic itinerary of people with leprosy: paths, struggles, and challenges in the search for care.

作者信息

Lima Eliziane Oliveira de, Silva Maria Rocineide Ferreira da, Marinho Mirna Neyara Alexandre de Sá Barreto, Alencar Olga Maria de, Pereira Thayza Miranda, Oliveira Lúcia Conde de, Anjos Saiwori de Jesus Silva Bezerra Dos

机构信息

Universidade Federal do Piauí. Picos, Piauí, Brazil.

Universidade Estadual do Ceará. Fortaleza, Ceará, Brazil.

出版信息

Rev Bras Enferm. 2021 Mar 24;74(1):e20200532. doi: 10.1590/0034-7167-2020-0532. eCollection 2021.

Abstract

OBJECTIVES

to understand how the therapeutic itineraries of people affected by leprosy are processed.

METHODS

this is a descriptive, qualitative study, conducted in April 2018 in Barão de Grajaú in Maranhão, with interviews in the form of narratives of seven patients who had a late leprosy diagnosis.

RESULTS

the search for diagnosis is a major difficulty in accessing health services, resulting in a late diagnosis and, consequently, with the presence of visible deformities. It was noticed that the health units do not have a flow, nor protocols for comprehensive treatment, and these people are referred to a referral unit in another state to perform sputum smear microscopy.

FINAL CONSIDERATIONS

leprosy control actions need reformulations that seek the relationship between operational activities, epidemiological indicators and risk factors, in accordance with the real needs of each region, thus highlighting the gaps evidenced in the therapeutic itineraries.

摘要

目的

了解麻风病患者的治疗流程是如何进行的。

方法

这是一项描述性的定性研究,于2018年4月在马拉尼昂州的巴朗德格拉若进行,采用对7名麻风病诊断较晚的患者进行叙事访谈的形式。

结果

寻求诊断是获得卫生服务的一个主要困难,导致诊断延迟,进而出现明显畸形。注意到卫生单位没有连贯的流程,也没有综合治疗方案,这些患者被转诊到另一个州的转诊单位进行痰涂片显微镜检查。

最终思考

麻风病控制行动需要重新规划,根据每个地区的实际需求,寻求业务活动、流行病学指标和风险因素之间的关系,从而突出治疗流程中所发现的差距。

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