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新冠疫情期间的多发性硬化症患者管理:葡萄牙多发性硬化症研究组(GEEM)的实用建议

Multiple Sclerosis Patient Management During the COVID-19 Pandemic: Practical Recommendations From the Portuguese Multiple Sclerosis Study Group (GEEM).

作者信息

Cerqueira João J, Ladeira Ana F, Silva Ana M, Timóteo Ângela, Vale José, Sousa Lívia, Arenga Marta, Abreu Pedro, Guerreiro Rui, de Sá João

机构信息

Life and Health Sciences Research Institute (Instituto de Investigação em Ciências da Vida e Saúde), School of Medicine, University of Minho, Braga, Portugal.

Neurology Department, Centro Hospitalar Universitário Lisboa Central, Lisbon, Portugal.

出版信息

Front Neurol. 2021 Mar 8;12:613769. doi: 10.3389/fneur.2021.613769. eCollection 2021.

Abstract

The spread of the COVID-19 pandemic has imposed significant challenges on healthcare provision, requiring changes in the conventional patient management, particularly in chronic diseases like multiple sclerosis (MS). To increase patient safety and reduce the risk of infection, while ensuring an appropriate and regular follow-up, tele-medicine gained prominence as a valid alternative to face-to-face appointments. However, the urgency of the implementation and the lack of experience in most MS centers led to "" and extremely diverse approaches, which now merit to be standardized and refined. Indeed, while tele-consultation cannot fully replace face-to-face visits, it certainly can, and will, be incorporated as part of the routine care of MS patients in the near future. Bearing this in mind, the Portuguese Multiple Sclerosis Study Group (GEEM) has developed a set of recommendations for the usage of tele-medicine in the management of MS patients, both during the pandemic and in the future. The consensus was obtained through a two-step modified Delphi methodology, resulting in 15 recommendations, which are detailed in the manuscript.

摘要

新冠疫情的蔓延给医疗服务带来了重大挑战,需要改变传统的患者管理方式,尤其是在多发性硬化症(MS)等慢性病方面。为了提高患者安全性并降低感染风险,同时确保适当且定期的随访,远程医疗作为面对面预约的有效替代方式而备受关注。然而,实施的紧迫性以及大多数MS中心缺乏经验导致了极其多样的方法,现在值得进行标准化和完善。的确,虽然远程会诊不能完全取代面对面就诊,但在不久的将来,它肯定能够而且将会被纳入MS患者的常规护理之中。考虑到这一点,葡萄牙多发性硬化症研究小组(GEEM)制定了一套关于在疫情期间及未来使用远程医疗管理MS患者的建议。通过两步改良德尔菲法达成了共识,得出了15条建议,这些建议在稿件中详细列出。

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