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这种不寻常的情况会变得常见吗?英国一项旨在增加关于器官和组织捐赠讨论的新法律变革。

Will the unusual become usual? A new legal change that aims to increase discussions around organ and tissue donation in England.

作者信息

Khiroya Heena, Sharif Adnan, Jones June, Willis Derek

机构信息

Queen Elizabeth Hospital, Birmingham, UK.

Edge Hill University, Ormskirk, UK.

出版信息

Future Healthc J. 2021 Mar;8(1):e170-e173. doi: 10.7861/fhj.2020-0098.

DOI:10.7861/fhj.2020-0098
PMID:33791502
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8004295/
Abstract

UK guidelines recommend that discussions about organ and tissue donation are conducted as part of end-of-life care. However, there are several barriers to discussing organ donation, and this is reflected in a critical shortage of donors. This article explores who should start the conversation about donation and how all healthcare practitioners can maximise their communication skills to have success in this area. It is particularly pertinent to be upskilled in this area in light of the recent legal change in England, where the system moved from an opt-in to a 'soft' opt-out one. Based on a similar legal change that took place in Wales and global data, it is unlikely that the legal change alone will prompt an increase in donation rates in England. This article proposes suggestions to increase awareness and conversations among healthcare professionals and patients with education, public health campaigns and interventions rooted in psychological theory.

摘要

英国指南建议,关于器官和组织捐赠的讨论应作为临终关怀的一部分进行。然而,讨论器官捐赠存在若干障碍,这反映在捐赠者严重短缺上。本文探讨了谁应该开启关于捐赠的对话,以及所有医疗从业者如何最大限度地提高他们的沟通技巧,以便在这一领域取得成功。鉴于英国最近的法律变化,即从选择加入制转变为“软性”选择退出制,在这一领域提升技能尤为重要。根据威尔士发生的类似法律变化和全球数据,仅靠法律变化不太可能促使英国的捐赠率上升。本文提出了一些建议,通过开展基于心理学理论的教育、公共卫生运动和干预措施,提高医疗专业人员和患者之间的认识并促进对话。

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Will the unusual become usual? A new legal change that aims to increase discussions around organ and tissue donation in England.这种不寻常的情况会变得常见吗?英国一项旨在增加关于器官和组织捐赠讨论的新法律变革。
Future Healthc J. 2021 Mar;8(1):e170-e173. doi: 10.7861/fhj.2020-0098.
2
"I am in favour of organ donation, but I feel you should opt-in"-qualitative analysis of the #options 2020 survey free-text responses from NHS staff toward opt-out organ donation legislation in England.我支持器官捐赠,但我觉得你应该选择加入”——对英格兰国民保健制度工作人员在#选项 2020 调查中对选择退出器官捐赠立法的免费文本回复的定性分析。
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Process evaluation of specialist nurse implementation of a soft opt-out organ donation system in Wales.威尔士专科护士实施软性默认器官捐献系统的过程评价。
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'It's like being conscripted, one volunteer is better than 10 pressed men': A qualitative study into the views of people who plan to opt-out of organ donation.“这就像被征召入伍一样,一个自愿者比 10 个被迫入伍的人要好”:对计划选择退出器官捐献的人的观点的定性研究。
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The effect on consent rates for deceased organ donation in Wales after the introduction of an opt-out system.在引入默认捐献制度后,威尔士对已故器官捐献同意率的影响。
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本文引用的文献

1
The effect on consent rates for deceased organ donation in Wales after the introduction of an opt-out system.在引入默认捐献制度后,威尔士对已故器官捐献同意率的影响。
Anaesthesia. 2020 Sep;75(9):1146-1152. doi: 10.1111/anae.15055. Epub 2020 May 5.
2
Grief, Stress, Trauma, and Support During the Organ Donation Process.器官捐赠过程中的悲伤、压力、创伤与支持
Transplant Direct. 2019 Dec 12;6(1):e512. doi: 10.1097/TXD.0000000000000957. eCollection 2020 Jan.
3
'If I donate my organs it's a gift, if you take them it's theft': a qualitative study of planned donor decisions under opt-out legislation.“如果我捐献器官,那是一份礼物;如果你们拿走,那就是盗窃”:一项关于默认捐献立法下计划捐献者决策的定性研究。
BMC Public Health. 2019 Nov 6;19(1):1463. doi: 10.1186/s12889-019-7774-1.
4
Comparison of organ donation and transplantation rates between opt-out and opt-in systems.比较退出和选择加入制度之间的器官捐赠和移植率。
Kidney Int. 2019 Jun;95(6):1453-1460. doi: 10.1016/j.kint.2019.01.036. Epub 2019 Mar 15.
5
Increasing Consent and Assent Rate for Organ and Tissue Donation: Communication About Donation-Telephone Advice by Psychologist.
Transplant Proc. 2018 Dec;50(10):3017-3024. doi: 10.1016/j.transproceed.2018.06.048. Epub 2018 Jul 4.
6
Communication with Families Regarding Organ and Tissue Donation after Death in Intensive Care (COMFORT): a multicentre before-and-after study.重症监护病房死亡后与家属沟通器官和组织捐赠(COMFORT):一项多中心前后对照研究。
Crit Care Resusc. 2018 Dec;20(4):268-276.
7
[Communication with relatives].[与亲属的沟通]
Med Klin Intensivmed Notfmed. 2019 Mar;114(2):122-127. doi: 10.1007/s00063-018-0512-0. Epub 2018 Nov 21.
8
A qualitative study using semi-structured interviews of palliative care patients' views on corneal donation and the timing of its discussion.一项使用半结构化访谈的定性研究,调查了姑息治疗患者对角膜捐赠的看法以及讨论时机。
Palliat Med. 2018 Sep;32(8):1428-1437. doi: 10.1177/0269216318784210. Epub 2018 Jul 2.
9
Relatives' Perception After Tissue Donation Experience: Results of a Postdonation Phone Survey.
Transplant Proc. 2017 Dec;49(10):2296-2298. doi: 10.1016/j.transproceed.2017.10.018.
10
Simulation-Based Communication Skills Training for Experienced Clinicians to Improve Family Conversations About Organ and Tissue Donation.基于模拟的沟通技巧培训,帮助经验丰富的临床医生改善关于器官和组织捐赠的家庭沟通。
Prog Transplant. 2017 Dec;27(4):339-345. doi: 10.1177/1526924817731881.