美国的研究人员是否在解决智力和发育障碍人群的癌症治疗和生存问题？一项范围综述。
Are Researchers Addressing Cancer Treatment and Survivorship Among People With Intellectual and Developmental Disabilities in the U.S.? A Scoping Review.
机构信息
Grace Samtani, Texas A&M University.
Tamsen L. Bassford, University of Arizona.
出版信息
Intellect Dev Disabil. 2021 Apr 1;59(2):141-154. doi: 10.1352/1934-9556-59.2.141.
Abstract
People with intellectual and developmental disabilities (PWIDD) often encounter barriers in the health care system when seeking general and specialized medical care. Literature has shown that PWIDD experience a lack of proper screening for and prevention of cancer compared to the general population. However, less is known regarding the cancer care and survivorship of PWIDD, especially in the United States. In this review, we examine what is currently known about the primary, psychosocial, and palliative care of PWIDD diagnosed with cancer. Our analyses reveal an immediate need for improvement in caregiver support, collaboration among health care providers, and ethical approaches to information disclosure for this population, as well as the establishment of more reliable standards of care through additional research with PWIDD.
摘要
智障和发育障碍人士（PWIDD）在寻求一般和专业医疗保健时，常常在医疗保健系统中遇到障碍。文献表明，与一般人群相比，PWIDD 在癌症筛查和预防方面存在不足。然而，关于 PWIDD 的癌症护理和生存状况，特别是在美国，人们知之甚少。在这篇综述中，我们研究了目前已知的 PWIDD 癌症患者的初级、心理社会和姑息治疗。我们的分析表明，需要立即改善照顾者的支持、医疗保健提供者之间的合作，以及为该人群提供信息披露的道德方法，并通过对 PWIDD 的进一步研究建立更可靠的护理标准。
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