Pediatric Hematology and Oncology, Istanbul University, Oncology Institute, Istanbul, Turkey.
Pediatric Hematology and Oncology, Bezmialem Vakif University, Istanbul, Turkey.
Curr Pediatr Rev. 2021;17(3):220-224. doi: 10.2174/1573396317666210405143649.
Palliative Care (PC) is defined by the World Health Organization (WHO) as a support provided by multiple disciplines in order to improve the quality of life of both patients and their caregivers, throughout the disease course, from diagnosis to end-of-life. PC aims to prevent and treat symptoms and side effects of the disease and its treatment. PC is well developed in most high- -income countries; however in most low-income settings, where approximately 80% of patients with cancer requiring PC care for advanced disease live, PC services are still uncommon. Health indicators monitoring global PC development are policy, education, use of medicines, service provision and professional activity. Globally, PC development may be categorized as Group 1 (no known hospice-PC activity), Group 2 (capacity-building activity), Groups 3a Isolated PC provided, 3b Generalized PC provided, 4a hospice-PC services at a stage of integration into regular service provision, and 4b hospice-PC services at a stage of advanced integration into regular service provision. Spirituality is an essential element of patient-centered PC. The use of Complementary and Traditional Medicine (CTM) in Middle Eastern countries is widespread. There are wide discrepancies in cancer care and PC in many regions of the world. The Individualized Care Planning and Coordination (ICPC) Model is designed to facilitate the advance care planning with continuity of all the measures like symptom control or emotional, social and spiritual care of both the patient and the family during the disease steps like relapse or end of life.
缓和医疗(PC)被世界卫生组织(WHO)定义为多学科共同提供的支持,以改善患者及其照护者的生活质量,贯穿疾病全程,从诊断到临终。PC 的目的是预防和治疗疾病及其治疗的症状和副作用。在大多数高收入国家,PC 已经得到了很好的发展;然而,在大多数低收入国家,大约 80%的需要晚期疾病 PC 护理的癌症患者居住的地方,PC 服务仍然很少见。监测全球 PC 发展的健康指标包括政策、教育、药物使用、服务提供和专业活动。全球范围内,PC 的发展可以分为以下几类:第 1 组(无已知的临终关怀 PC 活动)、第 2 组(能力建设活动)、第 3a 组(提供孤立的 PC)、第 3b 组(提供普遍的 PC)、第 4a 组(临终关怀 PC 服务处于整合到常规服务提供的阶段)和第 4b 组(临终关怀 PC 服务处于高级整合到常规服务提供的阶段)。灵性是患者为中心的 PC 的一个重要组成部分。在中东国家,补充和传统医学(CTM)的使用很普遍。世界上许多地区的癌症护理和 PC 存在很大差异。个体化护理计划和协调(ICPC)模型旨在促进预先护理计划,并在疾病的各个阶段(如复发或生命末期)提供连续性,包括症状控制或患者和家属的情感、社会和精神关怀等所有措施。