Hasson Felicity, McIlfatrick Sonja, Payne Sheila, Slater Paul, Finlay Dori-Anne, McConnell Tracey, Fee Anne
Institute of Nursing and Health Research, School of Nursing, Ulster University, Shore Road, Newtownabbey, BT37 0QB, Northern Ireland.
International Observatory on End of Life Care, Lancaster University, Lancaster, LA1 4YG, UK.
BMC Nurs. 2021 Apr 8;20(1):55. doi: 10.1186/s12912-021-00570-x.
Most people spend their last year of life at home, with many wishing to die there, but patients may need access to care after hours. Out-of-hours palliative care is delivered by multi-disciplinary teams including Health Care Assistants (HCA). However, little is known about the role, contribution and impact Health Care Assistants have on out-of-hours palliative care services. The aim of this study is to examine the Health Care Assistant role, contribution and impact on service delivery and patient care in out-of-hours community palliative care provided by hospice organisations.
A mixed methods exploratory study consisting of four phases. Phase one involves a scoping review to systematically map and identify gaps in policy and literature on the HCA role in out-of-hours palliative care. In phase two, all United Kingdom hospices will be invited to participate in an online census to enable the development of a typology of out-of-hours services and the contribution of the Health Care Assistant. During phase three organisational case studies representing different service types will collect information from Health Care Assistants, patients, caregivers and service managers to gather qualitative and quantitative data about out-of-hours service provision and the Health Care Assistant role. Finally, phase four will synthesize and refine results through online focus groups.
Ethical approval has been obtained for phase two through Ulster University Research Governance Filter Committee, Nursing and Health Research. Findings will be disseminated through practitioner and/or research journals, conferences, and social media.
大多数人在生命的最后一年是在家中度过的,许多人希望死在家里,但患者可能需要在非工作时间获得护理。非工作时间的姑息治疗由包括医疗保健助理(HCA)在内的多学科团队提供。然而,对于医疗保健助理在非工作时间姑息治疗服务中的作用、贡献和影响知之甚少。本研究的目的是探讨临终关怀组织提供的非工作时间社区姑息治疗中医疗保健助理的作用、贡献以及对服务提供和患者护理的影响。
一项混合方法的探索性研究,包括四个阶段。第一阶段包括范围审查,以系统地梳理和识别关于医疗保健助理在非工作时间姑息治疗中作用的政策和文献中的差距。在第二阶段,将邀请英国所有的临终关怀机构参加在线普查,以建立非工作时间服务类型学以及医疗保健助理的贡献。在第三阶段,代表不同服务类型的组织案例研究将从医疗保健助理、患者、护理人员和服务经理那里收集信息,以收集关于非工作时间服务提供和医疗保健助理角色的定性和定量数据。最后,第四阶段将通过在线焦点小组综合和完善结果。
第二阶段已通过阿尔斯特大学研究治理筛选委员会、护理与健康研究获得伦理批准。研究结果将通过从业者和/或研究期刊、会议和社交媒体进行传播。