Visiting Lecturer.
University of Hertfordshire, Hatfield, UK.
Omega (Westport). 2023 Mar;86(4):1349-1370. doi: 10.1177/00302228211009753. Epub 2021 Apr 11.
The Covid-19 crisis led to an increase in the 'total pain' of many terminally ill patients who faced a reduction in support, due to the temporary closure of front-line palliative day therapy services. A hospice volunteer, I instigated an online day therapy programme for patients previously attending face-to-face day therapy. Participant feedback revealed the importance of providing a space for ongoing peer support for participants' changing sense of identity, an issue for time-limited day therapy programmes. An exploration of key concepts associated with palliative care established the multiple connections between such changing identity and arts-based approaches to living well. This article charts how I used this understanding to develop an alternative, online arts-based support programme, . It explores the links between ongoing mutual support, arts-based activity and the reactions to a shifting identity in patients with a life-limiting illness.
新冠危机导致许多绝症患者的“总痛苦”增加，由于一线姑息日疗服务暂时关闭，他们的支持减少。作为一名临终关怀志愿者，我为以前参加面对面日疗的患者发起了一个在线日疗计划。参与者的反馈揭示了为参与者不断变化的身份感提供持续同伴支持的重要性，这是限时日疗计划的一个问题。对与姑息治疗相关的关键概念的探讨确立了这种不断变化的身份与以艺术为基础的美好生活方法之间的多种联系。本文介绍了我如何利用这一理解来开发替代的在线以艺术为基础的支持计划。它探讨了持续的相互支持、以艺术为基础的活动以及绝症患者对身份转变的反应之间的联系。
