Mclaren Sofia, Jhamb Manisha, Unruh Mark
Division of Nephrology, Department of Medicine, University of New Mexico, Albuquerque, New Mexico, USA.
Renal-Electrolyte Division, University of Pittsburgh Medical Center, Pittsburgh, Pennsylvania, USA.
Blood Purif. 2021;50(4-5):649-654. doi: 10.1159/000515640. Epub 2021 Apr 12.
Patients with CKD and ESRD are vulnerable to increased mortality rates and other poor outcomes. Among those with ESRD, their health-related quality of life (HRQOL) is shown little to no improvement as they undergo treatments such as dialysis and providers concurrently manage other health issues that complicate their already vulnerable state. This review synthesizes evidence demonstrating that a focus on measuring and monitoring patient-reported outcomes (PRO) such as pain and depression can improve HRQOL. Patient-centered care has the potential to create an efficient way for clinicians to address specific challenges facing patients. While there is an emerging literature assessing the use of PROs in kidney research, by examining relevant research in other disciplines it is possible to generate better ways to use PROs in this high-risk population. Electronic health records as well as various other electronic methods of communication between the clinician and patient may serve to accelerate the trajectory toward patient-centered care using PROs.
慢性肾脏病(CKD)和终末期肾病(ESRD)患者易出现死亡率上升及其他不良后果。在ESRD患者中,随着他们接受透析等治疗,同时医疗服务提供者还要处理其他使他们本就脆弱的状况更加复杂的健康问题,其健康相关生活质量(HRQOL)几乎没有改善。本综述综合了相关证据,表明关注测量和监测疼痛及抑郁等患者报告结局(PRO)可改善HRQOL。以患者为中心的护理有可能为临床医生应对患者面临的特定挑战创造一种有效的方式。虽然有新兴文献评估PRO在肾脏研究中的应用,但通过研究其他学科的相关研究,有可能找到在这一高风险人群中更好地使用PRO的方法。电子健康记录以及临床医生与患者之间的各种其他电子通信方式可能有助于加快使用PRO实现以患者为中心护理的进程。