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2019年冠状病毒病大流行期间,减轻1型糖尿病青少年家长的糖尿病困扰和低血糖恐惧所面临的挑战与考量

Challenges and Considerations for Reducing Diabetes Distress and Fear of Hypoglycemia in Parents of Youth With Type 1 Diabetes During the COVID-19 Pandemic.

作者信息

Monzon Alexandra, Kahhan Nicole, Marker Arwen, Patton Susana

机构信息

Clinical Child Psychology Program, University of Kansas, Lawrence, KS, United States.

Center for Healthcare Delivery Science, Nemours Children's Health System, Jacksonville, FL, United States.

出版信息

JMIR Pediatr Parent. 2021 Apr 23;4(2):e25106. doi: 10.2196/25106.

DOI:10.2196/25106
PMID:33848256
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8074947/
Abstract

Type 1 diabetes management can be challenging for children and their families. To address psychosocial concerns for parents of youth with type 1 diabetes, we developed two parent-focused interventions to reduce their diabetes distress and fear of hypoglycemia. Our team conducted several of these interventions during the early stages of the COVID-19 pandemic and recognized a need to make timely adjustments to our interventions. In this viewpoint article, we describe our experience conducting these manualized treatment groups during the pandemic, the range of challenges and concerns specific to COVID-19 that parents expressed, and how we adjusted our approach to better address parents' treatment needs.

摘要

1型糖尿病的管理对儿童及其家庭来说可能具有挑战性。为了解决1型糖尿病青少年家长的心理社会问题,我们开发了两种以家长为重点的干预措施,以减轻他们的糖尿病困扰和对低血糖的恐惧。我们的团队在新冠疫情初期进行了几次这样的干预,并认识到需要对我们的干预措施及时进行调整。在这篇观点文章中,我们描述了在疫情期间开展这些标准化治疗小组的经验、家长们表达的与新冠疫情相关的一系列挑战和担忧,以及我们如何调整方法以更好地满足家长的治疗需求。

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本文引用的文献

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Reducing Emotional Distress for Childhood Hypoglycemia in Parents (REDCHiP): Protocol for a Randomized Clinical Trial to Test a Video-Based Telehealth Intervention.减轻父母对儿童低血糖的情绪困扰(REDCHiP):一项测试基于视频的远程医疗干预措施的随机临床试验方案
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2
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Diabetes Care. 2020 Aug;43(8):e83-e85. doi: 10.2337/dc20-1088. Epub 2020 Jun 5.
3
Managing New-Onset Type 1 Diabetes During the COVID-19 Pandemic: Challenges and Opportunities.管理 COVID-19 大流行期间新发 1 型糖尿病:挑战与机遇。
Diabetes Technol Ther. 2020 Jun;22(6):431-439. doi: 10.1089/dia.2020.0161. Epub 2020 Apr 17.
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Diabetes Care. 2020 Jan;43(Suppl 1):S163-S182. doi: 10.2337/dc20-S013.
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Pediatr Diabetes. 2020 Feb;21(1):112-119. doi: 10.1111/pedi.12934. Epub 2019 Nov 3.
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