Department of Nephrology, Children's Hospital, Fudan University, Shanghai, China.
Department of Nursing, Children's Hospital, Fudan University, Shanghai, China.
Nurs Open. 2023 Apr;10(4):2203-2212. doi: 10.1002/nop2.1469. Epub 2022 Nov 17.
To describe the home care experience, challenges and coping strategies of caregivers with children on automatic peritoneal dialysis (PD) in mainland China during the early stage of the COVID-19 outbreak.
A qualitative descriptive approach was adopted. Semi-structured telephone interviews were conducted among 14 families with children on automatic peritoneal dialysis from February 2nd to 10th, 2020. The care routine, stress and coping strategies of caregivers of children on peritoneal dialysis were collected. The data were analysed using thematic analysis.
Four key themes were defined: (1) concerns about PD treatment intertwined with worries about COVID-19; (2) retaining a sense of normality in the middle of the challenges; (3) staying safe; and (4) staying positive and carrying on.
Families with children on automatic PD addressed the stress from COVID-19 and its containment measures by closely adhering to COVID-19 preventative measures, actively adjusting mentality and maintaining a sense of normality during the outbreak. This implies that healthcare staff need to be more aware of the complex medical needs of families with children on automatic PD, advocate for them and facilitate their navigation through the repurposed healthcare system.
描述 COVID-19 疫情早期中国大陆接受自动腹膜透析（PD）治疗的患儿家庭照护者的居家照护体验、面临的挑战和应对策略。
采用定性描述性方法。于 2020 年 2 月 2 日至 10 日，通过电话对半定式访谈对 14 例接受自动 PD 治疗的患儿家庭进行访谈，收集腹膜透析患儿家庭照护者的常规照护、压力和应对策略。采用主题分析法进行数据分析。
确定了 4 个关键主题：（1）PD 治疗与对 COVID-19 的担忧交织在一起；（2）在挑战中保持常态感；（3）保持安全；（4）保持积极并继续前行。
接受自动 PD 治疗的患儿家庭通过严格遵循 COVID-19 预防措施、积极调整心态和在疫情期间保持常态感，应对 COVID-19 及其防控措施带来的压力。这意味着医护人员需要更加了解接受自动 PD 治疗的患儿家庭的复杂医疗需求，为他们发声，并帮助他们在重新调整的医疗体系中顺利就诊。
