Hannover Medical School, Institute for General Practice, Hanover, Germany.
Omega (Westport). 2023 Mar;86(4):1371-1387. doi: 10.1177/00302228211008748. Epub 2021 Apr 14.
Little is known about support experiences and needs in the dyads of (1) terminally ill adult children and their parent caregivers and (2) terminally ill parents and their adult child caregivers. The current study aimed at investigating the experiences and needs of adult children and parents in end of life situations regarding their provision and receipt of support. The study employed a convergent parallel mixed-methods design, combining explorative qualitative interviews with the quantitative self-report Berlin Social Support Scales. Sixty-five patients (dyad 1: 19; dyad 2: 46) and 42 family caregivers (dyad 1: 13; dyad 2: 29) participated in the study (02/2018-11/2019). Results show that ill adult children felt less (well) supported than ill parents. Parent caregivers were often limited in the support they could provide, due to their age and health conditions. Hypotheses were deduced from patients' and family caregivers' notions to inform dyad-specific recommendations for support interventions.
关于（1）绝症成年子女及其父母照顾者和（2）绝症父母及其成年子女照顾者这两个群体的支持体验和需求，目前知之甚少。本研究旨在调查生命末期患者及其家属在提供和接受支持方面的体验和需求。本研究采用了汇聚平行混合方法设计，将探索性定性访谈与定量的柏林社会支持量表相结合。65 名患者（群体 1：19 名；群体 2：46 名）和 42 名家庭照顾者（群体 1：13 名；群体 2：29 名）参与了研究（2018 年 2 月至 2019 年 11 月）。结果表明，患病的成年子女比患病的父母感到支持较少（好）。由于年龄和健康状况，父母照顾者在提供支持方面往往受到限制。根据患者和家庭照顾者的观点得出假设，为支持干预措施提供群体特定的建议。
