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姑息治疗中照顾者负担的分析:一项综合综述。

Analysis of caregiver burden in palliative care: An integrated review.

作者信息

Choi Soyoung, Seo JooYoung

机构信息

The Pennsylvania State University, College of Nursing, University Park, Pennsylvania.

The Pennsylvania State University, Learning and Performance Systems-Learning, Design, and Technology, University Park, Pennsylvania.

出版信息

Nurs Forum. 2019 Apr;54(2):280-290. doi: 10.1111/nuf.12328. Epub 2019 Feb 8.

Abstract

The inclusion of caregivers in a holistic care approach represents a basic principle in palliative care. However, many palliative care professionals have a lack of understanding of difficulties or unmet needs among caregivers. To enhance the quality of life of caregivers and the quality of care for patients, healthcare professionals should be better informed about the constructs of caregiver burden. The aim of this study is to synthesize the concept of caregiver burden in palliative care, providing implications for the caregivers and their support systems. This concept analysis study adopts the integrative review approach and the basic text analysis method (ie, word frequency). The PubMed, CINAHL, Embase, and PsycINFO databases are explored for eligible studies. From this literature search, 66 articles from 1998 to 2018 are located. After data collection is completed, the two authors independently evaluate the quality of studies published before 1 September 2018. The caregiver burden is then redefined with its attributes, antecedents, consequences, empirical referents, and facilitators. It is recommended that the multidimensional concept of caregiver burden in palliative care be measured by considering caregiver characteristics and the caregiving context.

摘要

在整体护理方法中纳入照护者是姑息治疗的一项基本原则。然而,许多姑息治疗专业人员对照护者所面临的困难或未满足的需求缺乏了解。为了提高照护者的生活质量和患者的护理质量,医疗保健专业人员应更好地了解照护者负担的构成要素。本研究的目的是综合姑息治疗中照护者负担的概念,为照护者及其支持系统提供启示。这项概念分析研究采用综合综述方法和基本文本分析方法(即词频分析)。通过检索PubMed、CINAHL、Embase和PsycINFO数据库来查找符合条件的研究。通过这次文献检索,找到了1998年至2018年期间的66篇文章。数据收集完成后,两位作者独立评估2018年9月1日前发表的研究的质量。然后对照护者负担进行重新定义,并明确其属性、前因、后果、实证指标和促进因素。建议通过考虑照护者特征和照护背景来衡量姑息治疗中照护者负担的多维概念。

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