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研究保障措施的感知保护作用及其对参与研究意愿的影响:一项新型的 MTurk 初步研究。

Perceived protectiveness of research safeguards and influences on willingness to participate in research: A novel MTurk pilot study.

机构信息

Department of Psychiatry and Behavioral Sciences, Stanford University School of Medicine, 1520 Page Mill Road, Palo Alto, CA, 94304, USA.

Department of Psychiatry and Behavioral Sciences, Stanford University School of Medicine, 1520 Page Mill Road, Palo Alto, CA, 94304, USA.

出版信息

J Psychiatr Res. 2021 Jun;138:200-206. doi: 10.1016/j.jpsychires.2021.04.005. Epub 2021 Apr 6.

Abstract

Little is known about how individuals with mood disorders view the protectiveness of research safeguards, and whether their views affect their willingness to participate in psychiatric research. We conducted an online survey with 80 individuals (self-reported mood disorder [n = 25], self-reported good health [n = 55]) recruited via MTurk. We assessed respondents' perceptions of the protectiveness of five common research safeguards, as well as their willingness to participate in research that incorporates each safeguard. Perceived protectiveness was strongly related to willingness to participate in research for four of the safeguards. Our findings add to a limited literature on the motivations and perspectives of key stakeholders in psychiatric research.

摘要

目前对于心境障碍患者如何看待研究保护措施的保护性,以及他们的观点是否会影响他们参与精神科研究的意愿知之甚少。我们通过 MTurk 在线调查了 80 名个体(自我报告的心境障碍[n=25],自我报告的健康状况良好[n=55])。我们评估了受访者对五项常见研究保护措施的保护感知,以及他们对包含每项保护措施的研究的参与意愿。对于四项保护措施,感知的保护程度与参与研究的意愿密切相关。我们的研究结果丰富了关于精神科研究关键利益相关者的动机和观点的有限文献。

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