Verma Manisha, Bakitas Marie A
Department of Digestive Diseases and Transplantation, Einstein Healthcare Network, Philadelphia, PA USA.
School of Nursing, University of Alabama at Birmingham (UAB), Birmingham, AL USA.
Curr Hepatol Rep. 2021;20(2):43-52. doi: 10.1007/s11901-021-00562-0. Epub 2021 Apr 10.
The current healthcare system is not fully equipped to provide comprehensive support for patients with advanced liver disease (ALD) and their caregivers resulting in concomitant suffering and reduced quality of life (QoL). Integration of palliative care (PC) within routine care has demonstrated benefits in improving symptoms and QoL and reducing healthcare utilization for other serious illnesses but has been underutilized or delayed for ALD care. The purpose of this article is to outline the domains and benefits of PC and discuss the misconceptions and barriers for PC integration, and healthcare delivery models supporting PC integration within ALD care.
PC has eight key domains related to physical and mental health, goals for future care, and care of the caregivers. PC offers benefits to improve health outcomes and patient satisfaction and reduce healthcare utilization. To date there have been successful models of PC that are primarily hospital- or community-based; successful models have been PC specialist- or primary/generalist-led.
Concurrent PC within oncology has formed the basis for most evidence-based guidelines. PC integration within ALD care is still in its infancy. While amassing evidence in ALD, hepatology organizations can promote consensus-based integrated PC models that can guide research and practice efforts to increase supportive care for these patients in need and their family caregivers.
当前的医疗保健系统尚未完全具备为晚期肝病(ALD)患者及其护理人员提供全面支持的能力,这导致了患者及其护理人员的痛苦以及生活质量(QoL)的下降。将姑息治疗(PC)纳入常规护理已被证明有助于改善症状和生活质量,并减少其他严重疾病的医疗资源利用,但在ALD护理中却未得到充分利用或被延迟。本文旨在概述PC的领域和益处,讨论PC整合存在的误解和障碍,以及支持在ALD护理中整合PC的医疗服务提供模式。
PC有八个与身心健康、未来护理目标以及护理人员护理相关的关键领域。PC有助于改善健康结局和患者满意度,并减少医疗资源利用。迄今为止,已经有主要基于医院或社区的成功PC模式;成功的模式有以PC专科医生或初级/全科医生为主导的。
肿瘤学中的同步PC已成为大多数循证指南的基础。ALD护理中的PC整合仍处于起步阶段。在积累ALD相关证据的同时,肝病学组织可以推广基于共识的综合PC模式,以指导研究和实践工作,从而加强对这些有需要的患者及其家庭护理人员的支持性护理。