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本文引用的文献

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Family-Centered Care During the COVID-19 Era.新冠疫情时代的以家庭为中心的护理
J Pain Symptom Manage. 2020 Aug;60(2):e93-e97. doi: 10.1016/j.jpainsymman.2020.04.017. Epub 2020 Apr 22.
2
Rapid Implementation of Inpatient Telepalliative Medicine Consultations During COVID-19 Pandemic.在 COVID-19 大流行期间快速实施住院患者远程姑息治疗咨询。
J Pain Symptom Manage. 2020 Jul;60(1):e54-e59. doi: 10.1016/j.jpainsymman.2020.04.001. Epub 2020 Apr 10.
3
Video consultations in palliative care: A systematic integrative review.姑息治疗中的视频咨询:系统综合评价。
Palliat Med. 2019 Sep;33(8):942-958. doi: 10.1177/0269216319854938. Epub 2019 Jun 12.
4
The family conference as a focus to improve communication about end-of-life care in the intensive care unit: opportunities for improvement.以家庭会议为重点改善重症监护病房临终关怀沟通:改进的机会。
Crit Care Med. 2001 Feb;29(2 Suppl):N26-33. doi: 10.1097/00003246-200102001-00006.

在 COVID-19 大流行期间,住院姑息治疗电子家属会议的可行性和可接受性。

Feasibility and Acceptability of Inpatient Palliative Care E-Family Meetings During COVID-19 Pandemic.

机构信息

Division of Palliative Medicine, Department of Family and Preventive Medicine, Emory University School of Medicine, Atlanta, Georgia, USA.

Division of Palliative Medicine, Department of Family and Preventive Medicine, Emory University School of Medicine, Atlanta, Georgia, USA.

出版信息

J Pain Symptom Manage. 2020 Sep;60(3):e28-e32. doi: 10.1016/j.jpainsymman.2020.06.001. Epub 2020 Jun 4.

DOI:10.1016/j.jpainsymman.2020.06.001
PMID:32505643
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7272163/
Abstract

Family meetings are fundamental to the practice of palliative medicine and serve as a cornerstone of intervention on the inpatient palliative care consultation service. The COVID-19 pandemic disrupted the structure and process of in-patient family meetings, owing to necessary but restrictive visitor policies that did not allow families to be present in the hospital. We describe implementation of telemedicine to facilitate electronic family (e-family) meetings to facilitate in-patient palliative care. Of 67 scheduled meetings performed by the palliative care service, only two meetings were aborted for a 97% success rate of scheduled meetings occurring. On a five-point Likert-type scale, the average clinician rating of the e-family meeting overall quality was 3.18 (SD, .96). Of the 10 unique family participants who agreed to be interviewed, their overall ratings of the e-family meetings were high. Over 80% of respondent families participants reported that they agreed or strongly agreed that they were able to ask all of their questions, felt comfortable expressing their thoughts and feelings with the clinical team, felt like they understood the care their loved one received, and that the virtual family meeting helped them trust the clinical team. Of patients who were able to communicate, 50% of family respondents reported that the e-family meeting helped them understand their loved one's thoughts and wishes.

摘要

家庭会议是缓和医疗实践的基础,也是住院缓和医疗咨询服务干预的基石。由于必要但限制访客的政策不允许家属在医院,COVID-19 大流行打乱了住院家庭会议的结构和流程。我们描述了实施远程医疗以促进电子家庭(e-family)会议以促进住院缓和医疗。在缓和医疗服务安排的 67 次会议中,只有两次会议因 97%的预定会议按计划进行而被取消。在五分制的李克特量表中,临床医生对电子家庭会议整体质量的平均评分为 3.18(标准差,.96)。在同意接受采访的 10 位独特的家庭参与者中,他们对电子家庭会议的总体评价很高。超过 80%的受访者家庭参与者表示,他们同意或强烈同意他们能够提出所有问题,与临床团队表达他们的想法和感受感到自在,他们觉得自己理解了他们所爱的人所接受的护理,并且虚拟家庭会议帮助他们信任临床团队。在能够沟通的患者中,50%的家庭受访者表示,电子家庭会议帮助他们了解了他们所爱的人的想法和愿望。