Human Genetics, Centre of Genomics and Policy, McGill University, Montreal, Quebec, Canada
Human Genetics, Centre of Genomics and Policy, McGill University, Montreal, Quebec, Canada.
Med Humanit. 2022 Sep;48(3):285-297. doi: 10.1136/medhum-2020-012041. Epub 2021 Apr 23.
Participants in the human gene editing debate often consider examples from science fiction but have rarely engaged directly with the science fiction community as stakeholders. To understand how science fiction authors develop and spread their views on gene editing, we created an online questionnaire that was answered by 78 authors, including 71 who had previously written about genetic engineering. When asked which ethical issues science fiction should explore, respondents most frequently mentioned affordability, new social divisions, consent and unforeseen safety risks. They rarely advocated exploring psychological effects or religious objections. When asked which works of fiction had influenced their perceptions of gene editing, the most frequent responses were the film , the franchise and the novels and Unlike other stakeholders, they rarely cited as an influence. This article examines several differences between bioethicists, the general public and science fiction authors, and discusses how this community's involvement might benefit proponents and opponents of gene editing. It also provides an overview of works mentioned by our respondents that might serve as useful references in the debate.
参与人类基因编辑辩论的人经常会从科幻作品中寻找例子，但很少直接与科幻界的利益相关者接触。为了了解科幻作家如何形成和传播他们对基因编辑的看法，我们创建了一个在线问卷，有 78 位作者回答了这个问卷，其中 71 位作者之前写过关于基因工程的科幻小说。当被问及科幻小说应该探讨哪些伦理问题时，受访者最常提到的是可负担性、新的社会分化、同意和意想不到的安全风险。他们很少主张探讨心理影响或宗教反对意见。当被问及哪些虚构作品影响了他们对基因编辑的看法时，最常见的回答是电影《》系列和小说《》和《》。与其他利益相关者不同，他们很少提到《》作为影响因素。本文探讨了生物伦理学家、普通公众和科幻作家之间的几个差异，并讨论了该社区的参与如何使基因编辑的支持者和反对者受益。本文还概述了受访者提到的一些作品，这些作品可能在辩论中作为有用的参考。
