Department of Psychiatry II, Ulm University and BKH Günzburg, Ulm/Günzburg, Germany.
Soc Psychiatry Psychiatr Epidemiol. 2021 Sep;56(9):1513-1526. doi: 10.1007/s00127-021-02076-y. Epub 2021 Apr 24.
Honest, Open, Proud (HOP; formerly "Coming Out Proud"/COP) is a peer-led group program to support people with mental illness in their disclosure decisions and in their coping with stigma. The aims of this study were to provide (i) a conceptual review of HOP, including versions for different target groups and issues related to outcome measurement and implementation; and (ii) a meta-analysis of program efficacy.
Conceptual and empirical literature on disclosure and the HOP program was reviewed. Controlled trials of HOP/COP were searched in literature databases. A meta-analysis of HOP efficacy in terms of key outcomes was conducted.
HOP program adaptations for different target groups (e.g. parents of children with mental illness; veterans or active soldiers with mental illness) exist and await evaluation. Recruitment for trials and program implementation may be challenging. A meta-analysis of five HOP RCTs for adults or adolescents with mental illness or adult survivors of suicide attempts found significant positive effects on stigma stress (smd = - 0.50) as well as smaller, statistically non-significant effects on self-stigma (smd = - 0.17) and depression (smd = - 0.11) at the end of the HOP program. At 3- to 4-week follow-up, there was a modest, not statistically significant effect on stigma stress (smd = - 0.40, 95%-CI -0.83 to 0.04), while effects for self-stigma were small and significant (smd = - 0.24). Long-term effects of the HOP program are unknown.
There is initial evidence that HOP effectively supports people with mental illness in their disclosure decisions and in their coping with stigma. Implementation issues, future developments and public health implications are discussed.
诚实、开放、自豪(HOP;前身为“自豪地出柜”/COP)是一个由同龄人领导的小组项目,旨在支持有精神疾病的人做出披露决定,并帮助他们应对污名化。本研究的目的是提供 (i) HOP 的概念综述,包括针对不同目标群体的版本以及与结果测量和实施相关的问题;和 (ii) 对计划效果进行荟萃分析。
对披露和 HOP 计划的概念和实证文献进行了回顾。在文献数据库中搜索了针对 HOP/COP 的对照试验。对 HOP 疗效的关键结果进行了荟萃分析。
针对不同目标群体(例如有精神疾病的儿童的父母;有精神疾病的退伍军人或现役士兵)存在 HOP 计划的改编版本,但有待评估。试验招募和计划实施可能具有挑战性。对五项针对有精神疾病的成年人或青少年或自杀未遂的成年人幸存者的 HOP RCT 的荟萃分析发现,在 HOP 计划结束时,耻辱感压力有显著的积极影响(smd = -0.50),自我污名化的影响较小,且无统计学意义(smd = -0.17),抑郁(smd = -0.11)。在 3 至 4 周的随访中,耻辱感压力有适度但无统计学意义的影响(smd = -0.40,95%CI -0.83 至 0.04),而自我污名化的影响较小且具有统计学意义(smd = -0.24)。HOP 计划的长期效果尚不清楚。
有初步证据表明,HOP 有效地支持有精神疾病的人做出披露决定,并帮助他们应对污名化。讨论了实施问题、未来发展和公共卫生意义。