Centre for Research in Autism and Education (CRAE), IOE, UCL's Faculty of Education and Society, UK.
UCL Research Department of Clinical, Educational and Health Psychology, UK.
Autism. 2024 Aug;28(8):2090-2104. doi: 10.1177/13623613231221685. Epub 2024 Feb 10.
'Who, When, How to Share' is a new programme that aims to support autistic adults in making decisions around sharing their autistic identity with others. The programme involves working through a self-help guide independently over 3 weeks with optional peer support. We wanted to find out if autistic adults would join the programme and find it useful. Thirty-two autistic adults took part in the programme and 19 of them completed it. Most participants who completed the programme liked the programme and found it helpful, but some felt that they needed more time and support to complete it. They suggested that the programme would be more accessible if it was more interactive, such as including videos and other ways to gain feedback on their progress. Surveys filled in by participants before and after the programme suggested that they became more confident and less stressed about sharing their autistic identity with others, but some felt they still needed to build more confidence in order to handle negative attitudes from others. More work is needed to improve and test the programme further.
“谁、何时、如何分享”是一个新的项目，旨在支持自闭症成年人做出与他人分享其自闭症身份的决策。该项目涉及在 3 周内独立使用自助指南，并可选择获得同伴支持。我们想了解自闭症成年人是否会加入该项目并发现其有用。32 名自闭症成年人参加了该项目，其中 19 人完成了该项目。大多数完成该项目的参与者喜欢该项目并认为它很有帮助，但有些人认为他们需要更多的时间和支持才能完成它。他们建议，如果该项目更加互动，例如包括视频和其他获取进度反馈的方式，那么该项目将更加易于访问。参与者在参加该项目前后填写的调查显示，他们对与他人分享自闭症身份的信心增强了，压力也减轻了，但有些人认为他们仍需要建立更多的信心，以应对他人的负面态度。需要进一步改进和测试该项目。
