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了解亚洲癌症遗传学服务中患者对远程医疗的看法和意愿。

Understanding patients' views and willingness toward the use of telehealth in a cancer genetics service in Asia.

机构信息

Cancer Genetics Service, Division of Medical Oncology, National Cancer Centre Singapore, Singapore City, Singapore.

Lee Kong Chian School of Medicine, Nanyang Technological University, Singapore City, Singapore.

出版信息

J Genet Couns. 2021 Dec;30(6):1658-1670. doi: 10.1002/jgc4.1432. Epub 2021 May 1.

Abstract

Telehealth is a growing field, its pertinence magnified by COVID-19 causing the accelerated digitalization of the world. Given the significant global demand to provide telehealth services, it is important to explore patient receptiveness toward this alternative service model, particularly from regions where it has yet to be implemented. We conducted a cross-sectional study to understand the views and willingness of patients toward the use of telehealth for cancer genetic counseling. A survey was completed by 160 patients of the National Cancer Centre Singapore, and descriptive statistics were used to analyze the data. The study found that 95.6% (n = 153/160) of participants did not have prior telehealth experience. Most participants were willing or neutral toward having genetic counseling by phone (n = 114/160, 71.3%) and video (n = 106/160, 66.3%). However, majority prefer in-person appointments for first (n = 127/160, 79.4%) and follow-up (n = 97/160, 60.6%) visits over telehealth. Majority agreed that a phone/video consultation would meet most of their needs but voiced concerns regarding privacy and sharing of information (n = 79/160, 49.4% for phone; n = 74/160, 46.3% for video) and whether their emotional needs could be met (n = 61/160, 38.1%). Participants' age, employment status, income, mode of transportation to the appointment, and whether special arrangements were made to attend the in-person appointment were associated with receptivity to telehealth genetic counseling (p ≤ .05 for all). This study adds diversity to existing literature and demonstrates that patients from Asia are generally willing and accepting of the use of telehealth in a cancer genetics service. This will help meet increasing global demand of telehealth consultations in the post-pandemic new norm. Furthermore, it will also provide services for underserved populations and patients requiring urgent testing in a timely manner. Further studies are needed to explore the cost-effectiveness and fair billing methods, as well as willingness and acceptability of telehealth genetic counseling in post-COVID times.

摘要

远程医疗是一个快速发展的领域,新冠疫情加速了全球数字化进程,使远程医疗的相关性更加凸显。鉴于全球对远程医疗服务的巨大需求,了解患者对这种替代服务模式的接受程度非常重要,尤其是在尚未实施远程医疗的地区。我们进行了一项横断面研究,以了解新加坡国家癌症中心患者对使用远程医疗进行癌症遗传咨询的看法和意愿。该研究对 160 名新加坡国家癌症中心的患者进行了调查,使用描述性统计方法对数据进行分析。研究发现,95.6%(n=153/160)的参与者以前没有远程医疗经验。大多数参与者对通过电话(n=114/160,71.3%)和视频(n=106/160,66.3%)进行遗传咨询持愿意或中立态度。然而,大多数人更倾向于亲自预约首次(n=127/160,79.4%)和后续(n=97/160,60.6%)就诊,而不是远程医疗。大多数人认为电话/视频咨询可以满足他们的大部分需求,但对隐私和信息共享(n=79/160,电话咨询占 49.4%;n=74/160,视频咨询占 46.3%)以及是否能够满足他们的情感需求(n=61/160,占 38.1%)表示担忧。参与者的年龄、就业状况、收入、就诊交通工具以及是否为亲自就诊安排了特殊安排与对远程医疗遗传咨询的接受程度相关(p≤.05)。这项研究为现有文献增添了多样性,并表明亚洲患者通常愿意接受远程医疗在癌症遗传学服务中的应用。这将有助于满足后疫情新常态下全球对远程医疗咨询的日益增长的需求。此外,它还将为服务不足的人群和需要及时进行紧急检测的患者提供服务。还需要进一步研究以探讨远程医疗遗传咨询在新冠疫情后的成本效益和公平计费方法,以及患者的意愿和接受程度。

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