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J Am Med Inform Assoc. 2018 Dec 1;25(12):1593-1599. doi: 10.1093/jamia/ocy120.
2
A survey of mobile technology usage and desires by caregivers of children with cancer.儿童癌症患者照顾者的移动技术使用情况和需求调查。
Pediatr Blood Cancer. 2018 Nov;65(11):e27359. doi: 10.1002/pbc.27359. Epub 2018 Jul 17.
3
Parent-centered communication at time of pediatric cancer diagnosis: A systematic review.儿科癌症诊断时以家长为中心的沟通:系统评价。
Pediatr Blood Cancer. 2018 Aug;65(8):e27070. doi: 10.1002/pbc.27070. Epub 2018 Apr 18.
4
The Oncology Family App: Providing Information and Support for Families Caring for Their Child With Cancer.肿瘤学家庭应用程序:为照顾患癌子女的家庭提供信息与支持。
J Pediatr Oncol Nurs. 2018 Mar/Apr;35(2):94-102. doi: 10.1177/1043454217741874. Epub 2017 Nov 21.
5
Care Partnerships: Toward Technology to Support Teens' Participation in Their Health Care.关爱伙伴关系:迈向支持青少年参与自身医疗保健的技术。
Proc SIGCHI Conf Hum Factor Comput Syst. 2016 May 7;2016:5337-5349. doi: 10.1145/2858036.2858508.
6
Association between pediatric home management plan of care compliance and asthma readmission.儿科家庭护理计划依从性与哮喘再入院之间的关联。
J Asthma. 2017 Sep;54(7):761-767. doi: 10.1080/02770903.2016.1263651. Epub 2016 Dec 8.
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A user-centered model for designing consumer mobile health (mHealth) applications (apps).一种以用户为中心的消费者移动健康(mHealth)应用程序(app)设计模型。
J Biomed Inform. 2016 Apr;60:243-51. doi: 10.1016/j.jbi.2016.02.002. Epub 2016 Feb 20.
8
Characteristics of Children With Cancer Discharged or Admitted From the Emergency Department.从急诊科出院或入院的癌症患儿的特征。
Pediatr Blood Cancer. 2016 May;63(5):853-8. doi: 10.1002/pbc.25872. Epub 2015 Dec 29.
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CONCERN for Cancer: New National Institutes of Health Network to Focus on Cancer Patients in the Emergency Department.关注癌症:美国国立卫生研究院新网络将聚焦急诊科癌症患者
Ann Emerg Med. 2015 Jul;66(1):13A-15A. doi: 10.1016/j.annemergmed.2015.05.015.
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J Telemed Telecare. 2016 Apr;22(3):163-71. doi: 10.1177/1357633X15594753. Epub 2015 Aug 12.

标题:儿童肿瘤应急规划(COPE)工具:与癌症患儿照料者共同进行原型设计

Title: The Children's Oncology Planning for Emergencies (COPE) Tool: Prototyping with Caregivers of Children with Cancer.

作者信息

Mueller Emily L, Cochrane Anneli R, Moore Courtney M, Miller Andrew D, Wiehe Sarah E

机构信息

Indiana University, Indianapolis, IN.

Riley Hospital for Children, Indianapolis, IN.

出版信息

AMIA Annu Symp Proc. 2021 Jan 25;2020:896-905. eCollection 2020.

PMID:33936465
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8075434/
Abstract

As part of a larger project to co-design and create a mHealth tool to support caregivers of children with cancer, we performed a pilot, qualitative study. For this portion of the project, we engaged with caregivers of children with cancer to co-create and refine a low-fidelity prototype of the Children's Oncology Planning for Emergencies mHealth tool. Testing was accomplished through recorded semi-structured interviews with each caregiver as they interacted with a low-fidelity wireframe using Adobe Xd. Through the engagement of our key stakeholders, we were able to refine the COPE tool to provide the key elements they desired including pertinent patient medical information, checklist for planning when seeking urgent care, and coordination of care with the medical team and other caregivers.

摘要

作为共同设计和创建一个移动健康工具以支持癌症患儿照料者的大型项目的一部分,我们开展了一项试点性定性研究。对于该项目的这一部分,我们与癌症患儿照料者合作,共同创建并完善了儿童肿瘤紧急情况规划移动健康工具的低保真原型。测试是通过对每位照料者进行录制的半结构化访谈来完成的,访谈过程中他们使用Adobe Xd与低保真线框进行交互。通过与关键利益相关者的合作,我们得以完善了COPE工具,以提供他们所需的关键要素,包括相关患者医疗信息、寻求紧急护理时的规划清单,以及与医疗团队和其他照料者的护理协调。