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标题:儿童肿瘤应急规划(COPE)工具:与癌症患儿照料者共同进行原型设计

Title: The Children's Oncology Planning for Emergencies (COPE) Tool: Prototyping with Caregivers of Children with Cancer.

作者信息

Mueller Emily L, Cochrane Anneli R, Moore Courtney M, Miller Andrew D, Wiehe Sarah E

机构信息

Indiana University, Indianapolis, IN.

Riley Hospital for Children, Indianapolis, IN.

出版信息

AMIA Annu Symp Proc. 2021 Jan 25;2020:896-905. eCollection 2020.

Abstract

As part of a larger project to co-design and create a mHealth tool to support caregivers of children with cancer, we performed a pilot, qualitative study. For this portion of the project, we engaged with caregivers of children with cancer to co-create and refine a low-fidelity prototype of the Children's Oncology Planning for Emergencies mHealth tool. Testing was accomplished through recorded semi-structured interviews with each caregiver as they interacted with a low-fidelity wireframe using Adobe Xd. Through the engagement of our key stakeholders, we were able to refine the COPE tool to provide the key elements they desired including pertinent patient medical information, checklist for planning when seeking urgent care, and coordination of care with the medical team and other caregivers.

摘要

作为共同设计和创建一个移动健康工具以支持癌症患儿照料者的大型项目的一部分,我们开展了一项试点性定性研究。对于该项目的这一部分,我们与癌症患儿照料者合作,共同创建并完善了儿童肿瘤紧急情况规划移动健康工具的低保真原型。测试是通过对每位照料者进行录制的半结构化访谈来完成的,访谈过程中他们使用Adobe Xd与低保真线框进行交互。通过与关键利益相关者的合作,我们得以完善了COPE工具,以提供他们所需的关键要素,包括相关患者医疗信息、寻求紧急护理时的规划清单,以及与医疗团队和其他照料者的护理协调。

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