Department of Healthcare Policy & Research, Weill Cornell Medical College, New York, New York, USA.
School of Interactive Computing, Georgia Institute of Technology, Atlanta, Georgia, USA.
J Am Med Inform Assoc. 2018 Dec 1;25(12):1593-1599. doi: 10.1093/jamia/ocy120.
Parents routinely access young children's medical records, but medical societies strongly recommend confidential care during adolescence, and most medical centers restrict parental records access during the teen years. We sought to assess public opinion about adolescent medical privacy.
The Cornell National Social Survey (CNSS) is an annual nationwide public opinion survey. We added questions about a) whether parents should be able to see their 16-year-old child's medical record, and b) whether teens would avoid discussing sensitive issues (sex, alcohol) with doctors if parents could see the record. Hypothesizing that highlighting the rationale for adolescent privacy would change opinions, we conducted an experiment by randomizing question order.
Most respondents (83.0%) believed that an adolescent would be less likely to discuss sensitive issues with doctors with parental medical record access; responses did not differ by question order (P = .29). Most also believed that parents should have access to teens' records, but support for parental access fell from 77% to 69% among those asked the teen withholding question first (P = .01).
Although medical societies recommend confidential care for adolescents, public opinion is largely in favor of parental access. A brief "nudge," asking whether parental access might harm adolescent-doctor communication, increased acceptance of adolescent confidentiality, and could be part of a strategy to prepare parents for electronic patient portal policies that medical centers impose at the beginning of adolescence.
父母通常会查阅未成年子女的医疗记录,但医学协会强烈建议在青少年时期提供保密护理,而且大多数医疗中心在青少年时期限制父母查阅记录。我们旨在评估公众对青少年医疗隐私的看法。
康奈尔国家社会调查(CNSS)是一项年度全国性公众意见调查。我们增加了以下两个问题:a)父母是否应该能够查看其 16 岁孩子的医疗记录,以及 b)如果父母可以查看记录,青少年是否会避免与医生讨论敏感问题(如性、酒精)。我们假设突出青少年隐私的基本原理会改变观点,因此通过随机化问题顺序进行了实验。
大多数受访者(83.0%)认为,如果父母可以查看医疗记录,青少年与医生讨论敏感问题的可能性较小;但问题顺序对回答没有影响(P=.29)。大多数人还认为父母应该能够查阅青少年的记录,但在首先询问青少年隐瞒记录问题的受访者中,支持父母查阅记录的比例从 77%降至 69%(P=.01)。
尽管医学协会建议为青少年提供保密护理,但公众意见主要支持父母查阅记录。简短的“推动”,即询问父母查阅记录是否可能会损害青少年与医生的沟通,增加了对青少年保密性的接受程度,这可能是为父母准备医疗中心在青少年时期开始实施的电子患者门户政策的策略的一部分。