Department of Communication Studies, Colorado State University, Fort Collins, CO 80523, USA.
Department of Sociology, Colorado State University, Fort Collins, CO 80523, USA.
Int J Environ Res Public Health. 2021 Apr 29;18(9):4755. doi: 10.3390/ijerph18094755.
(1) Introduction: Caring for an adult with dementia is both challenging and rewarding. Research indicates that community-based, social support, and/or arts engagement interventions can play a key role in ameliorating the negative outcomes associated with caregiving while enhancing its more positive attributes. This study explores the psychosocial outcomes experienced by dementia caregivers who participated in a multi-year, multidimensional intervention aimed at promoting caregiver and care recipient well-being. This intervention included bringing caregivers and people with Alzheimer's disease or related dementias (ADRD) to local symphony performances, hosting a social reception prior to the performance, and assessing the outcomes of participation for both caregiver and the care recipient. (2) Materials, Methods, and Analysis: Qualitative data from participant phone interviews ( = 55) as well as focus groups are analyzed using thematic analysis from a phenomenological perspective. (3) Results: Across three years of participation, caregivers reported three main program benefits: relationship building (both with other participants as well as within the broader community); restored humanity (experiencing a greater sense of personal dignity and momentary return to normalcy), and positivity (experiencing positive emotions during the program). (4) Discussion: These findings point to the value of creating caregiver programming that brings together multiple dimensions of successful interventions in order to enhance caregiver experiences and positive intervention outcomes.
(1) 引言:照顾患有痴呆症的成年人既有挑战性又有回报。研究表明,以社区为基础的、社会支持的和/或艺术参与的干预措施可以在改善与护理相关的负面后果的同时,增强其更积极的属性方面发挥关键作用。本研究探讨了参与一项旨在促进护理人员和护理对象福祉的多年多维干预的痴呆症护理人员所经历的心理社会结果。该干预措施包括将护理人员和患有阿尔茨海默病或相关痴呆症(ADRD)的人带到当地的交响乐演奏会,在演出前举办社交招待会,并评估护理人员和护理对象参与的结果。(2) 材料、方法和分析:对来自参与者电话访谈(=55)的定性数据以及焦点小组使用从现象学角度进行的主题分析进行分析。(3) 结果:在参与的三年中,护理人员报告了三个主要的项目效益:建立关系(与其他参与者以及更广泛的社区);恢复人性(体验到更大的个人尊严感和暂时恢复正常)和积极性(在项目中体验到积极的情绪)。(4) 讨论:这些发现表明,创建将成功干预的多个维度结合在一起的护理人员计划具有价值,以增强护理人员的体验和积极的干预结果。