McManus Kim, Tao Hong, Jennelle Pamela J, Wheeler Josephine C, Anderson Gabriella A
AdventHealth Research Institute, Orlando, FL, USA.
Aging Ment Health. 2022 Apr;26(4):735-744. doi: 10.1080/13607863.2021.1891200. Epub 2021 Mar 26.
This study aimed to determine the feasibility and acceptability of a multi-modal performing arts intervention (MPAI) for caregivers of people with mild to moderately severe dementia. The secondary objective was to examine how MPAI might change caregiver burden, caregiver resiliency, and perceived quality of life (QoL) for care recipients.
The study features a mixed-methods design. Caregivers ( = 32) completed the Zarit Burden Interview (caregiver burden) Brief Resilience Scale (resiliency) and Quality of Life-Alzheimer's disease measure (care recipient QoL) at five study timepoints. Semi-structured interviews ( = 15) documented the intervention's acceptability and caregivers' subjective experiences. Feasibility was indexed through withdrawal and attendance analysis. Braun and Clarke (2006) thematic analysis guided the qualitative analysis.
Caregiver burden significantly declined from baseline through final follow-up. Caregiver resiliency and care recipient QoL were not significantly changed but trended up during the intervention until it dropped at the end of the program. Qualitative data suggests the reversal in resiliency and QoL may be explained by caregivers' increased anxiety as the program ended. Acceptability data indicated caregivers were unanimously highly satisfied with the intervention, desiring to continue participation. Feasibility findings provide recommendations for intervention improvements.
MPAI could reduce caregiver burden and increase resilience for informal caregivers of a person with dementia. Effects drop off quickly at the end of the program, indicating the need for ongoing interventions that provide social support, a respite from the pressures of care recipients' dependency, and the relief that caregivers experience when they perceive benefits to their care recipient's well-being.
本研究旨在确定一种多模式表演艺术干预（MPAI）对轻度至中度严重痴呆症患者照料者的可行性和可接受性。次要目的是研究MPAI如何改变照料者负担、照料者复原力以及照料对象的感知生活质量（QoL）。
本研究采用混合方法设计。32名照料者在五个研究时间点完成了 Zarit 负担访谈（照料者负担）、简易复原力量表（复原力）和阿尔茨海默病生活质量量表（照料对象QoL）。15次半结构化访谈记录了干预措施的可接受性和照料者的主观体验。通过退出和出勤分析来衡量可行性。采用 Braun 和 Clarke（2006）的主题分析法进行定性分析。
从基线到最终随访，照料者负担显著下降。照料者复原力和照料对象QoL虽无显著变化，但在干预期间呈上升趋势，直至项目结束时下降。定性数据表明，复原力和QoL的逆转可能是由于项目结束时照料者焦虑增加所致。可接受性数据表明，照料者对干预措施一致高度满意，并希望继续参与。可行性研究结果为干预措施的改进提供了建议。
MPAI可以减轻痴呆症患者非正式照料者的负担，并增强其复原力。在项目结束时效果迅速下降，这表明需要持续进行干预，提供社会支持，缓解照料对象依赖带来的压力，并让照料者在感知到照料对象福祉受益时得到解脱。
