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父亲在其子女被诊断出自闭症谱系障碍方面的体验:国际研究的叙事综述。

Experiences of fathers regarding the diagnosis of their child with autism spectrum disorder: A narrative review of the international research.

机构信息

School of Nursing and Midwifery, Belfast, UK.

School of Nursing and Midwifery, University of Dublin, Trinity College, Dublin, Ireland.

出版信息

J Clin Nurs. 2021 Oct;30(19-20):2758-2768. doi: 10.1111/jocn.15781. Epub 2021 May 5.

Abstract

AIM AND OBJECTIVES

The aim of this systematic review was to identify the views and experiences of fathers regarding their child's Autism Spectrum Disorder diagnosis.

BACKGROUND

The diagnosis of a child's Autism Spectrum Disorder may be a stressful experience, creating uncertainty for parents. There has been a limited research focus on the views and experiences of fathers in relation to the diagnosis of Autism Spectrum Disorder of their child.

DESIGN

A systematic literature review of quantitative, qualitative and mixed-methods research studies.

DATA SOURCES

Academic Search Complete, CINAHL, MEDLINE and PsycINFO.

METHODS

From August to October 2020, two authors independently performed a systematic data extraction and appraised the studies using a recognised instrument. The PRISMA checklist was used in the review.

RESULTS

Nine papers met the inclusion criteria. Four themes emerged: (a) gradual recognition of developmental delay, (b) an emotional time, (c) coping and adaptation and (d) ongoing adjustments to the fathering role.

CONCLUSIONS

Nurses and other professionals need to work collaboratively with fathers to improve their experiences and provide supports at the time of Autism Spectrum Disorder diagnosis.

摘要

目的和目标

本系统评价的目的是确定父亲对其子女自闭症谱系障碍诊断的看法和经验。

背景

儿童自闭症谱系障碍的诊断可能是一个压力很大的经历,给父母带来了不确定性。对于父亲在其子女自闭症谱系障碍诊断方面的看法和经验,研究的重点有限。

设计

对定量、定性和混合方法研究进行系统文献综述。

资料来源

学术搜索全文、CINAHL、MEDLINE 和 PsycINFO。

方法

在 2020 年 8 月至 10 月期间,两名作者独立进行了系统的数据提取,并使用公认的工具对研究进行了评估。本综述使用 PRISMA 清单。

结果

有 9 篇论文符合纳入标准。出现了四个主题:(a)逐渐认识到发育迟缓,(b)情绪时间,(c)应对和适应,以及(d)对父亲角色的持续调整。

结论

护士和其他专业人员需要与父亲合作,改善他们在自闭症谱系障碍诊断时的体验,并提供支持。

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