FIZ Karlsruhe-Leibniz-Institut für Informationsinfrastruktur, Hermann-von-Helmholtz-Platz 1, Eggenstein-Leopoldshafen, Germany.
McGill University Faculty of Medicine, Centre of Genomics and Policy, Montreal, Canada.
Eur J Hum Genet. 2021 Oct;29(10):1502-1509. doi: 10.1038/s41431-021-00893-y. Epub 2021 May 6.
On 16 July 2020, the Court of Justice of the European Union issued their decision in the Schrems II case concerning Facebook's transfers of personal data from the EU to the US. The decision may have significant effects on the legitimate transfer of personal data for health research purposes from the EU. This article aims: (i) to outline the consequences of the Schrems II decision for the sharing of personal data for health research between the EU and third countries, particularly in the context of the COVID-19 pandemic; and, (ii) to consider certain options available to address the consequences of the decision and to facilitate international data exchange for health research moving forward.
2020 年 7 月 16 日,欧盟法院就 Schrems II 案作出裁决,该案涉及 Facebook 将个人数据从欧盟转移到美国。该裁决可能对出于健康研究目的从欧盟合法转移个人数据产生重大影响。本文旨在:(i)概述 Schrems II 裁决对欧盟与第三国之间健康研究中个人数据共享的影响,特别是在 COVID-19 大流行背景下;以及,(ii)考虑解决该裁决后果的某些选择方案,并为今后健康研究的国际数据交换提供便利。