Institute for Health Research and Education, Department of Dermatology, Environmental Medicine and Health Theory, University of Osnabrueck, Am Finkenhuegel 7a, 49076, Osnabrueck, Germany.
Institute for Interdisciplinary Dermatological Prevention and Rehabilitation (iDerm), University of Osnabrueck, Am Finkenhuegel 7a, 49076, Osnabrueck, Germany.
Syst Rev. 2021 May 7;10(1):141. doi: 10.1186/s13643-021-01687-5.
Eczematous skin diseases, e.g., atopic dermatitis or contact dermatitis, are associated with a high disease burden, a significant impact on quality of life and a higher risk for anxiety and depression. Therefore, coping strategies are of interest. In order to understand coping processes, it is necessary to examine the patients' perspectives on their illness. The aim of this systematic mixed studies review is to investigate the illness perceptions of patients with eczematous skin diseases to get a better understanding of their coping processes.
We performed a systematic literature search in PubMed, The Cochrane Library, PsycInfo, PSYNDEX, CINAHL, Web of Science, and Scopus until February 20, 2019. Both qualitative and quantitative studies were included in the review. Two independent reviewers conducted data extraction and carried out a narrative synthesis. We assessed study quality with the Mixed Methods Appraisal Tool.
Three qualitative and four quantitative studies were included in the systematic review. We found different methodological approaches for investigating illness perceptions: guided interviews, focus group interviews as well as standardized questionnaires, e.g., the Brief Illness Perception Questionnaire. All studies report suspected causes of the skin disease, such as endogenous and exogenous causes (namely, psychological or occupational factors). We found long timeline beliefs as well as various perceived and experienced social, economic, and psychological consequences. Our analysis reveals complex emotional representations in patients with eczematous skin diseases, in particular impairment of emotional well-being, and feelings of shame or helplessness. Qualitative and quantitative data were predominantly complementary and convergent.
Patients with eczematous skin diseases have complex illness representations regarding their disease. These representations interrelate with the coping behavior of patients. Therefore, medical professionals should consider them for counseling and treatment.
PROSPERO 2018 CRD42018109217 .
湿疹性皮肤病，如特应性皮炎或接触性皮炎，与疾病负担高、生活质量显著下降以及焦虑和抑郁风险增加有关。因此，应对策略受到关注。为了了解应对过程，有必要研究患者对自身疾病的看法。本系统混合研究综述的目的是调查湿疹性皮肤病患者的疾病认知，以更好地了解他们的应对过程。
我们在 2019 年 2 月 20 日之前在 PubMed、The Cochrane Library、PsycInfo、PSYNDEX、CINAHL、Web of Science 和 Scopus 中进行了系统的文献检索。综述纳入了定性和定量研究。两名独立的审查员进行了数据提取，并进行了叙述性综合。我们使用混合方法评估工具评估了研究质量。
综述纳入了 3 项定性研究和 4 项定量研究。我们发现了不同的方法来研究疾病认知：指导性访谈、焦点小组访谈以及标准化问卷，例如，简要疾病认知问卷。所有研究都报告了皮肤疾病的可疑病因，例如内源性和外源性病因（即心理或职业因素）。我们发现了长期的时间线信念，以及各种感知到的和经历过的社会、经济和心理后果。我们的分析揭示了湿疹性皮肤病患者复杂的情绪表现，特别是情绪健康受损，以及感到羞耻或无助。定性和定量数据主要是互补和一致的。
湿疹性皮肤病患者对自身疾病有复杂的疾病认知。这些认知与患者的应对行为相互关联。因此，医务人员在为患者提供咨询和治疗时应考虑到这些因素。
PROSPERO 2018 CRD42018109217 。
Zotero 插件
