Department of Otolaryngology, Medical College of Wisconsin, Milwaukee, WI, USA.
Masters Family Speech and Hearing Clinic, Children's Wisconsin, Milwaukee, WI, USA.
Int J Pediatr Otorhinolaryngol. 2021 Jul;146:110741. doi: 10.1016/j.ijporl.2021.110741. Epub 2021 Apr 28.
To investigate and identify the concerns and opinions expressed in both parental and provider posts on social media about ankyloglossia.
In this study, posts on Twitter between 1/1/2008 and 12/31/2018 were collected using search terms and hashtags specific to pediatric ankyloglossia. The search terms included a primary phrase to indicate ankyloglossia along with a pediatric identifier. Tweets that met inclusion criteria were analyzed qualitatively via conventional content analysis. After all tweets were categorized, descriptive statistics were completed to determine frequency of each theme.
In total, 5951 tweets were retrieved. Parents authored 982 (16.5%) of tweets, and 782 (13.1%) were by providers. The remaining 4187 tweets did not fit criteria for either the parent or provider groups. Amongst parents, the most common themes mentioned were feeding problems (309 tweets [32.4%]), followed by lip tie (215 [22.5%]), anxiety or emotion (207 [21.7%]), and maternal breastfeeding complications (127 [13.3%]). The number of tweets about ankyloglossia and frenotomy in 2018 had increased by 2395% since 2009. Amongst providers, 215 tweets were judged by the coders to provide an opinion on ankyloglossia, of which 94.4% had a pro-frenotomy sentiment. When a specialty was identified, tweets were most often by dentists (250 [31.9%]), followed by lactation consultants and International Board Certified Lactation Consultants (IBCLCs) (157 [29.7%]) and non-otolaryngologist physicians (79 [10.1%]). Otolaryngologists accounted for 8.7% (68 tweets) of posts about ankyloglossia.
Our findings demonstrate the spectrum of opinions that exist among both parents and providers about ankyloglossia. This can aid in shared-decision making by enabling the counseling provider to guide recommendations based on medical evidence with the understanding that there is a large amount of non-scientific information and opinions disseminated that may be shaping decisions.
调查并确定父母和医疗服务提供者在社交媒体上发布的有关舌系带过紧的帖子中所表达的关注点和意见。
本研究通过使用特定于儿科舌系带过紧的搜索词和标签，收集了 2008 年 1 月 1 日至 2018 年 12 月 31 日期间在 Twitter 上发布的帖子。搜索词包括表示舌系带过紧的主要短语和儿科标识符。分析了符合纳入标准的推文，通过常规内容分析进行定性分析。对所有推文进行分类后，完成了描述性统计以确定每个主题的频率。
共检索到 5951 条推文。父母撰写了 982 条（16.5%），其中 782 条（13.1%）来自医疗服务提供者。其余 4187 条推文不符合父母或提供者群体的标准。在父母中，提到最多的主题是喂养问题（309 条[32.4%]），其次是唇系带（215 条[22.5%]）、焦虑或情绪（207 条[21.7%]）和产妇母乳喂养并发症（127 条[13.3%]）。2018 年关于舌系带过紧和系带切开术的推文数量自 2009 年以来增加了 2395%。在医疗服务提供者中，有 215 条推文被编码员判断为对舌系带过紧发表了意见，其中 94.4%的意见支持系带切开术。当确定专业时，最常发布关于舌系带过紧的推文的是牙医（250 条[31.9%]），其次是哺乳顾问和国际认证哺乳顾问（IBCLC）（157 条[29.7%]）和非耳鼻喉科医生（79 条[10.1%]）。耳鼻喉科医生发布的关于舌系带过紧的帖子占 8.7%（68 条）。
我们的研究结果表明，父母和医疗服务提供者对舌系带过紧的看法存在差异。这有助于通过让咨询提供者根据医学证据提供建议来实现共同决策，同时理解存在大量非科学信息和意见正在影响决策。
