Department of Otolaryngology-Head and Neck Surgery, Johns Hopkins University School of Medicine, Baltimore, Maryland.
Department of Medicine, The Johns Hopkins University, Baltimore, Maryland.
JAMA Otolaryngol Head Neck Surg. 2019 Jan 1;145(1):45-52. doi: 10.1001/jamaoto.2018.2917.
Tonsillectomy is common in children, but little is known about parental preferences and values concerning this surgical procedure. Twitter offers an opportunity to evaluate parental understanding and experience of tonsillectomy care.
To identify parental perspectives about tonsillectomy in children that may not be apparent in a routine clinical encounter.
DESIGN, SETTING, AND PARTICIPANTS: In this qualitative study, social media platform Twitter was searched for posts (tweets) published between January 1, 2008, and December 31, 2017, by US-based parents about their child's tonsillectomy. Modified grounded theory was applied to develop a coding taxonomy to classify the tweets. Tweets were assessed for thematic synthesis and classification, and descriptive statistics were obtained for each theme.
Themes of parental experiences and perspectives about their child's tonsillectomy.
Of the 5801 total tweets retrieved, 782 (13.5%) satisfied the inclusion criteria. Tweets were categorized under 2 overarching themes: procedural concerns (549 tweets [70.2%]) and attitudes or experiences (498 [63.7%]). Common tweets under procedural concerns mentioned surgical indication for tonsillectomy (55 tweets [7.0%]); eg, "strep-I think it's tonsil removing time…") and recovery (227 tweets [29.0%]), including child's attitude (89 tweets [11.4%]; eg, "so hard to get my daughter to eat") and parental experience (87 tweets [11.1%]; eg, "tonsillectomy recovery sucks for the parent as much as the kid!"). Common tweets regarding attitudes or experiences included the tenor of overall care (225 tweets [28.6%]; eg, "Tonsillectomy is a bear") and fears or apprehensions (209 tweets [26.6%]).
These social media findings may be used to guide clinicians in educating and counseling parents as well as further engaging parents and children in shared decision making for tonsillectomy.
扁桃体切除术在儿童中很常见，但人们对父母对此类手术的偏好和价值观知之甚少。Twitter 为评估父母对扁桃体切除术护理的理解和经验提供了机会。
确定父母对儿童扁桃体切除术的看法，这些看法在常规临床就诊中可能不明显。
设计、地点和参与者：在这项定性研究中，搜索了美国父母在 2008 年 1 月 1 日至 2017 年 12 月 31 日期间在社交媒体平台 Twitter 上发布的关于其孩子扁桃体切除术的帖子（推文）。应用修改后的扎根理论来开发一个编码分类法来对推文进行分类。对推文进行主题综合和分类评估，并获得每个主题的描述性统计数据。
父母对孩子扁桃体切除术的经验和看法的主题。
在总共检索到的 5801 条推文中，有 782 条（13.5%）符合纳入标准。推文分为 2 个总体主题：程序问题（549 条 [70.2%]）和态度或经验（498 条 [63.7%]）。程序问题下常见的推文提到了扁桃体切除术的手术指征（55 条 [7.0%]）；例如，“链球菌感染——我想是时候切除扁桃体了……”）和恢复（227 条 [29.0%]），包括孩子的态度（89 条 [11.4%]；例如，“让我女儿吃东西太难了”）和父母的经验（87 条 [11.1%]；例如，“扁桃体切除术后，父母和孩子一样难受！”）。关于态度或经验的常见推文包括整体护理的基调（225 条 [28.6%]）；例如，“扁桃体切除术很困难”）和恐惧或担忧（209 条 [26.6%]）。
这些社交媒体研究结果可用于指导临床医生教育和咨询父母，并进一步让父母和孩子参与扁桃体切除术的共同决策。
