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毛里求斯被诊断患有 1 型糖尿病的儿童的母亲的生活体验:一项现象学研究。

Lived Experience of Mothers Having a Child Diagnosed with Type 1 Diabetes in Mauritius: A Phenomenological Study.

机构信息

Faculty of Medicine and Health Sciences, University of Mauritius, Mauritius.

出版信息

J Pediatr Nurs. 2021 Sep-Oct;60:e104-e109. doi: 10.1016/j.pedn.2021.03.030. Epub 2021 May 7.

Abstract

PURPOSE

Since there is no existing qualitative study on Type 1 Diabetes (T1D) in Mauritius, this study was undertaken to explore the lived experience of mothers having a child with T1D in Mauritius.

DESIGN AND METHODS

This research work used a phenomenological approach with the interview of a purposeful sample of eleven mothers having a child diagnosed with T1D. Data collected was analyzed by two independent investigators. Ethical clearance was obtained from the Department of Medicine Ethics Committee of the University of Mauritius.

RESULTS

The emerging themes were 'Facing disruption in life', 'Experiencing mixed feelings', 'Taking matters in hands' and 'Coping with life'. They put forward the four major components of the lived experience of being the mother of a child diagnosed with T1D. 3 to 4 minor themes.

CONCLUSIONS

The study shows that diagnosis of Type 1 Diabetes in a child has a profound psychosocial impact on mother's personal, family and professional lives. There is need to support parents in the delivery of optimal care to their child to avoid unpredictable complications and unnecessary loss of lives.

PRACTICE IMPLICATIONS

Both nurses and doctors should be aware of their crucial role in demonstrating empathy towards parents/children affected by T1D. There is a need for training programs to develop a culture where empathy enhances nursing and medical practice.

摘要

目的

由于毛里求斯目前尚无关于 1 型糖尿病(T1D)的定性研究,因此本研究旨在探讨毛里求斯患有 T1D 儿童的母亲的生活体验。

设计和方法

本研究采用现象学方法,对 11 名患有 T1D 儿童的母亲进行了有针对性的访谈。收集的数据由两名独立的研究者进行分析。毛里求斯大学医学伦理委员会已获得伦理批准。

结果

出现的主题是“生活中断”、“体验复杂情绪”、“掌控局面”和“应对生活”。他们提出了作为确诊 T1D 儿童母亲的生活体验的四个主要组成部分。还有 3 到 4 个次要主题。

结论

研究表明,儿童确诊 1 型糖尿病会对母亲的个人、家庭和职业生活产生深远的心理社会影响。有必要支持父母为孩子提供最佳护理,以避免不可预测的并发症和不必要的生命损失。

实践意义

护士和医生都应该意识到他们在向受 T1D 影响的父母/孩子表示同情方面的关键作用。需要开展培训计划,培养一种同理心增强护理和医疗实践的文化。

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