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父母对 1 型糖尿病患儿的照护体验:定性元分析。

Parental care experience of children with type 1 diabetes: a qualitative meta-synthesis.

机构信息

Zhengzhou University, School of Nursing and Health, Zhengzhou, China.

出版信息

Rev Esc Enferm USP. 2024 Nov 11;58:e20240118. doi: 10.1590/1980-220X-REEUSP-2024-0118en. eCollection 2024.

Abstract

OBJECTIVE

To assess qualitative studies on parents' caregiving experiences whose children have T1DM and develop personalized support strategies based on the findings.

METHOD

A systematic review with meta-synthesis performed in the Cochrane Library, Embase, Scopus, CINAHL, PubMed, Web of Science, CNKI, CBM, VIP, and Wanfang databases. Quality was assessed via the JBI criteria, and meta-aggregative method was applied to categorize the results into subtopics and aggregate into three interrelated meta-topics to understand parents' caregiving experiences.

RESULTS

In total, 2,100 articles were found, out of which 15 were selected and analyzed. The identified three meta-topics were "Parents facing multiple physical, mental and life challenges", "Parents' lack of a full range of external support" and "Parents' caregiving role competency enhanced to adjust to the new life".

CONCLUSION

it is critical for healthcare professionals to recognize these parental experiences and offer targeted knowledge, skills training, and psychological support tailored to their needs, including group training, online mindfulness interventions, and improved empathy from the medical team.

摘要

目的

评估儿童患有 1 型糖尿病的父母的照护经验的定性研究,并根据研究结果制定个性化的支持策略。

方法

在 Cochrane 图书馆、Embase、Scopus、CINAHL、PubMed、Web of Science、CNKI、CBM、VIP 和万方数据库中进行系统评价和元综合。使用 JBI 标准评估质量,并采用元聚合方法将结果分类为子主题,并汇总为三个相互关联的元主题,以了解父母的照护经验。

结果

共检索到 2100 篇文章,其中选取并分析了 15 篇。确定的三个元主题为“父母面临多种身体、心理和生活挑战”、“父母缺乏全方位的外部支持”和“父母的照护角色能力增强以适应新生活”。

结论

医疗保健专业人员必须认识到这些父母的经历,并根据他们的需求提供有针对性的知识、技能培训和心理支持,包括团体培训、在线正念干预和提高医疗团队的同理心。

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