Hollingdrake Olivia, Dean Judith, Mutch Allyson, Lui Chi-Wai, Howard Chris, Fitzgerald Lisa
Olivia Hollingdrake, PhD, MPH, GCert (Onc Nursing), BN, RN, is a Lecturer, School of Nursing, Queensland University of Technology, Brisbane, Australia. Judith Dean, PhD, MPHTM, BN, RN, Midwife, Centaur Fellow, is a Senior Research Fellow, School of Public Health, The University of Queensland, Brisbane, Australia. Allyson Mutch, PhD, GCert (Higher Ed), BA (Hons), Senior Fellow HEA, is an Associate Professor, School of Public Health, The University of Queensland, Brisbane, Australia. Chi-Wai Lui, PhD, MA, GCert (Higher Ed), BA, is a Research Associate, Queensland Bioethics Centre, Australian Catholic University, Brisbane, Australia. Chris Howard is the Executive Programs Manager, Queensland Positive People, Brisbane, Australia. Lisa Fitzgerald, PhD, GCert (Higher Ed), DPH, MA (dis), BA (Hons), is an Associate Professor, School of Public Health, The University of Queensland, Brisbane, Australia.
J Assoc Nurses AIDS Care. 2022;33(2):106-117. doi: 10.1097/JNC.0000000000000272.
Understanding of HIV self-management increasingly focuses on treatment adherence and associated health-related behaviors, yet people living with HIV (PLWH) seldom perform these actions in a social vacuum. Thus, delivering comprehensive self-management support programs for PLWH requires an understanding of the social and emotional dimensions of HIV self-management. Through thematic analysis of in-depth interviews with 35 newly diagnosed PLWH, this descriptive qualitative study highlights these dimensions and their effect on experiences of HIV diagnosis and care. HIV self-management involves interpersonal interactions that affect efforts to seek support and reimagine one's personal identity in a changed reality. Managing disclosures and navigating stigma constitute everyday work for many PLWH. Because stigma continues to impede care engagement and well-being for PLWH, health practitioners must extend focus beyond viral suppression and prioritize support for emotional and social self-management. Nurses can create safe, nonstigmatizing spaces for conversations about HIV, uphold the rights of PLWH around disclosure, and ensure that PLWH are connected to peer support services.
对艾滋病毒自我管理的理解越来越侧重于治疗依从性及相关的健康行为，但艾滋病毒感染者很少在社会真空中采取这些行动。因此，为艾滋病毒感染者提供全面的自我管理支持项目需要了解艾滋病毒自我管理的社会和情感层面。通过对35名新诊断的艾滋病毒感染者进行深入访谈的主题分析，这项描述性定性研究突出了这些层面及其对艾滋病毒诊断和护理体验的影响。艾滋病毒自我管理涉及人际互动，这些互动会影响寻求支持的努力以及在变化的现实中重塑个人身份的努力。对许多艾滋病毒感染者来说，管理信息披露和应对耻辱感是日常工作。由于耻辱感继续阻碍艾滋病毒感染者参与护理和影响其福祉，卫生从业者必须将关注点从病毒抑制扩展到情感和社会自我管理的支持上，并将其作为优先事项。护士可以为有关艾滋病毒的对话创造安全、无耻辱感的空间，维护艾滋病毒感染者在信息披露方面的权利，并确保艾滋病毒感染者能够获得同伴支持服务。
