Hollingdrake Olivia, Lui Chi-Wai, Dean Judith A, Mutch Allyson, Howard Chris, Fitzgerald Lisa
Olivia Hollingdrake, PhD, MPH, GCert (Onc Nursing), BN, RN is a Lecturer, School of Nursing, Queensland University of Technology, Brisbane, Australia. Chi-Wai Lui, PhD, MA, GCert (Higher Ed), BA, is a Research Associate, Queensland Bioethics Centre, Australian Catholic University, Brisbane, Australia. Judith A. Dean, PhD, MPHTM, BN, RN, Midwife, Centaur Fellow, is a Senior Research Fellow, School of Public Health, The University of Queensland, Brisbane, Australia. Allyson Mutch, PhD, GCert (Higher Ed), BA (Hons), Senior Fellow HEA, is an Associate Professor, School of Public Health, The University of Queensland, Brisbane, Australia. Chris Howard is the Executive Programs Manager, Queensland Positive People, Brisbane, Australia. Lisa Fitzgerald, PhD, GCert (Higher Ed), DPH, MA (Dis), BA (Hons), is an Associate Professor, School of Public Health, The University of Queensland, Brisbane, Australia.
J Assoc Nurses AIDS Care. 2022;33(6):624-637. doi: 10.1097/JNC.0000000000000351. Epub 2022 Jul 8.
Support networks promote care engagement and prevent social isolation for people living with HIV (PLWH). This study examined the personal support networks of recently diagnosed PLWH and explored how these networks change over time. We developed qualitative social network maps with 10 recently diagnosed PLWH in Queensland and identified unique and dynamic support networks. Network changes over time were influenced by changing support needs and experiences of stigma. Some support networks grew, whereas others remained small and close-knit or became sparse. The pivotal role of peers for information and emotional support was revealed. Socially isolated PLWH also described substantial reliance on long-term professional support. Others described reasons why health professionals were excluded from support networks, revealing the importance of nonjudgmental attitudes and HIV literacy among health professionals. Facilitating ongoing links with peers and professionals are crucial strategies to help PLWH foster effective and sustainable networks for comprehensive long-term support.
支持网络促进了艾滋病毒感染者（PLWH）参与护理并防止其社会孤立。本研究调查了近期确诊的艾滋病毒感染者的个人支持网络，并探讨了这些网络如何随时间变化。我们与昆士兰州10名近期确诊的艾滋病毒感染者绘制了定性社会网络图，并确定了独特且动态的支持网络。随着时间推移，网络变化受到支持需求变化和耻辱经历的影响。一些支持网络扩大了，而另一些则保持规模小且紧密或变得稀疏。研究揭示了同伴在提供信息和情感支持方面的关键作用。社会孤立的艾滋病毒感染者还表示严重依赖长期专业支持。其他人描述了将卫生专业人员排除在支持网络之外的原因，揭示了卫生专业人员非评判态度和艾滋病毒知识素养的重要性。促进与同伴和专业人员的持续联系是帮助艾滋病毒感染者建立有效且可持续的网络以获得全面长期支持的关键策略。
