Ortelli Paola, Ferrazzoli Davide, Versace Viviana, Saltuari Leopold, Sebastianelli Luca
Department of Neurorehabilitation Hospital of Vipiteno (SABES-ASDAA) Vipiteno-Sterzing Italy.
Alzheimers Dement (N Y). 2021 May 12;7(1):e12166. doi: 10.1002/trc2.12166. eCollection 2021.
We focus attention on problems that are affecting the informal caregivers of patients with neurodegenerative disorders in the time of COVID-19. The pandemic is increasing difficulties in the management of the frailest people and their isolation is actually even more tangible than it was in the past. The social restrictions and the lockdown of many activities are putting the system of care provided by informal caregivers on the edge of collapse. We incite the scientific community to face these concerns and provide clinicians clear indications for assisting and supporting caregivers in the care of their relatives during this period. We suggest that e-health programs could become the ideal "environment" to favor the continuity of care for patients with neurodegenerative conditions and guarantee the required support to their caregivers, both directly in terms of psychological management and indirectly for helping them in disease management.
我们将注意力集中在新冠疫情期间影响神经退行性疾病患者非正式照料者的问题上。这场大流行正在增加照料最虚弱人群的难度,而且他们的隔离实际上比过去更加明显。社会限制措施以及许多活动的封锁,正使非正式照料者提供的护理体系濒临崩溃。我们呼吁科学界正视这些问题,并为临床医生提供明确指导,以便在此期间协助和支持照料者照顾其亲属。我们认为,电子健康项目可能会成为理想的“环境”,有利于为神经退行性疾病患者提供持续护理,并确保为其照料者提供所需支持,这既包括直接在心理管理方面,也包括间接帮助他们进行疾病管理。