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针对新诊断出1型糖尿病的幼儿父母的个性化支持性行为护理方法的实施与初步可行性研究

Implementation and Preliminary Feasibility of an Individualized, Supportive Approach to Behavioral Care for Parents of Young Children Newly Diagnosed With Type 1 Diabetes.

作者信息

Tully Carrie, Clary Lauren, Monaghan Maureen, Levy Wendy, Hilliard Marisa E, Streisand Randi

机构信息

Children's National Health System and George Washington University.

Texas Children's Hospital and Baylor College of Medicine.

出版信息

Cogn Behav Pract. 2021 May;28(2):293-308. doi: 10.1016/j.cbpra.2020.06.006. Epub 2020 Aug 5.

Abstract

There are significant stressors related to parenting a young child with newly diagnosed type 1 diabetes (T1D). Despite these challenges, there are not yet clearly defined interventions to help promote psychological health and adherence for families with young children with T1D. First STEPS is a tailored stepped care design intervention to positively impact parents' emotional functioning and children's glycemic control in young children newly diagnosed with T1D. The First STEPS intervention is derived from a combination of Cognitive Behavioral Theory and Social Cognitive Theory to support family adjustment to T1D, promote parental mastery over T1D tasks, increase coping skills to manage stressors associated with T1D, and build on the strengths of families newly diagnosed with T1D to help them achieve positive health and wellbeing outcomes. We present details about the intervention and describe two pilot participants as case studies. Results indicated that the treatment and delivery model were acceptable to the pilot participants, as evidenced by treatment completion and satisfaction ratings. Future directions for this work include testing the efficacy of this new treatment in a randomized controlled trial.

摘要

养育一名新诊断出1型糖尿病(T1D)的幼儿会带来巨大的压力源。尽管存在这些挑战,但对于帮助患有T1D的幼儿家庭促进心理健康和提高依从性,目前尚未有明确界定的干预措施。“第一步”(First STEPS)是一种量身定制的逐步护理设计干预措施,旨在对新诊断出T1D的幼儿家长的情绪功能以及孩子的血糖控制产生积极影响。“第一步”干预措施源自认知行为理论和社会认知理论的结合,以支持家庭适应T1D,促进家长掌握T1D相关任务,提高应对与T1D相关压力源的技能,并基于新诊断出T1D的家庭的优势,帮助他们实现积极的健康和幸福成果。我们介绍了该干预措施的详细情况,并将两名试点参与者作为案例进行描述。结果表明,治疗和实施模式为试点参与者所接受,治疗完成情况和满意度评分证明了这一点。这项工作未来的方向包括在随机对照试验中测试这种新治疗方法的疗效。

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