Division of Developmental and Behavioral Health, Section of Psychology, Children's Mercy Kansas City, Kansas City, MO.
Department of Pediatrics, UMKC School of Medicine, Kansas City, MO.
J Dev Behav Pediatr. 2021;42(5):429-431. doi: 10.1097/DBP.0000000000000971.
Julia is a 13-year-old White adolescent girl who was referred for psychological counseling given concerns related to mood, nonadherence, and adjustment secondary to her new diagnosis of type 1 diabetes. The family lives in a rural town located several hours from the academic medical center where she was diagnosed. After several months on a waitlist, the family was contacted to schedule a telehealth appointment with a predoctoral psychology trainee. When the scheduler informed the mother that her daughter would be scheduled with Ms. Huang, the mother abruptly stopped the conversation stating, "I do not want to waste everyone's time" and initially declined the appointment offered. When the scheduler asked about her hesitance, the mother disclosed previous interactions with doctors at the hospital who were "not born in the United States" that she felt were "textbook" (e.g., smiling even when discussing a new chronic medical condition) and "hard to understand" (i.e., because of different dialect/accent). The mother shared that she found these experiences to be stressful and felt the interactions had negatively affected Julia's care. When informed about the length of the waitlist for another clinician, the mother agreed to initiate services with the trainee.The supervising psychologist shared the mother's concerns and comments with Ms. Huang. After discussion, Ms. Huang agreed to provide intervention services, "as long as the family was willing." During the initial telehealth sessions, Ms. Huang primarily focused on building rapport and strengthening the therapeutic alliance with the family. During this time, Julia's mother was reluctant to incorporate suggested parent management strategies at home. Julia also made minimal improvement in her medical management (i.e., A1c levels remained high), had difficulty using behavioral coping strategies, and experienced ongoing mood symptoms (i.e., significant irritability, sleep difficulties, and depressive symptoms). Ms. Huang began to wonder whether the family's resistance and inability to implement recommendations were in some part because of the family's initial concerns and reluctance to engage in therapy with her as a clinician.Should Ms. Huang address the previously identified concerns with the patient and her family? What should be considered when determining how to approach this situation to ensure provision of both the best care for this patient and support for this trainee?
朱莉娅是一名 13 岁的白人少女,她因新诊断的 1 型糖尿病而出现情绪问题、不遵医嘱和适应不良,因此被转介接受心理咨询。这个家庭住在离她被诊断的学术医疗中心几个小时路程的一个农村小镇上。在等待数月后,他们接到通知,预约了一名预博士心理学实习生的远程医疗预约。当调度员告诉母亲,她的女儿将由黄女士接诊时,母亲突然中断了通话,说道:“我不想浪费大家的时间”,并最初拒绝了提供的预约。当调度员询问她的犹豫时,母亲透露了她之前与医院的医生的互动,这些医生“不是在美国出生的”,她觉得这些医生“像教科书一样”(例如,即使在讨论新的慢性疾病时也面带微笑),而且“难以理解”(即因为不同的方言/口音)。母亲表示,她觉得这些经历很有压力,并认为这些互动对朱莉娅的治疗产生了负面影响。当得知另一位临床医生的候补名单的长度时,母亲同意与实习生开始服务。监督心理学家与黄女士分享了母亲的担忧和意见。讨论后,黄女士同意提供干预服务,“只要家庭愿意”。在最初的远程医疗会议期间,黄女士主要专注于与家庭建立融洽关系和加强治疗联盟。在此期间,朱莉娅的母亲不愿意在家中采用建议的父母管理策略。朱莉娅在医疗管理方面也几乎没有改善(即 A1c 水平仍然很高),难以使用行为应对策略,并且持续出现情绪症状(即明显的易怒、睡眠困难和抑郁症状)。黄女士开始怀疑家庭的抵制和无法实施建议是否部分是因为家庭最初的担忧和不愿意与她作为临床医生进行治疗。黄女士是否应该解决之前与患者及其家庭提出的担忧?在确定如何处理这种情况以确保为这名患者提供最佳护理和支持这名实习生时,应该考虑哪些因素?