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医疗保健专业人员对晚期癌症患者自我管理的看法:一项访谈研究。

The views of healthcare professionals on self-management of patients with advanced cancer: An interview study.

作者信息

van Dongen S I, Stoevelaar R, Kranenburg L W, Noorlandt H W, Witkamp F E, van der Rijt C C D, van der Heide A, Rietjens J A C

机构信息

Department of Public Health, Erasmus University Medical Centre, Rotterdam, The Netherlands.

Department of Psychiatry, Erasmus University Medical Centre, Rotterdam, The Netherlands.

出版信息

Patient Educ Couns. 2022 Jan;105(1):136-144. doi: 10.1016/j.pec.2021.05.021. Epub 2021 May 17.

Abstract

OBJECTIVES

Self-management of patients with advanced cancer is challenging. Although healthcare professionals may play a crucial role in supporting these patients, scant scientific attention has been paid to their perspectives. Therefore, we examined healthcare professionals' views on self-management and self-management support in this population.

METHODS

We conducted qualitative interviews with 27 purposively sampled medical specialists (n = 6), nurse specialists (n = 6), general practitioners (n = 8) and homecare/ hospice nurses (n = 7) in the Netherlands. Transcripts were analysed using thematic analysis.

RESULTS

Healthcare professionals experienced self-management of patients with advanced cancer to be diverse, dynamic and challenging. They adopted instructive, collaborative and advisory roles in self-management support for this population. Whereas some professionals preferred or inclined towards one role, others indicated to switch roles, depending on the situation.

CONCLUSIONS

Just like patients with advanced cancer, healthcare professionals differ in their views and approaches regarding self-management and self-management support in this population. Therefore, instructive, collaborative and advisory self-management support roles will all be useful under certain circumstances.

PRACTICE IMPLICATIONS

Healthcare professionals can support self-management by being aware of their own views and communicating these clearly to their patients and colleagues. Education in self-management support should include self-reflection skills and discuss the relation between self-management and professional care.

摘要

目的

晚期癌症患者的自我管理具有挑战性。尽管医疗保健专业人员在支持这些患者方面可能发挥关键作用,但他们的观点却很少受到科学关注。因此,我们研究了医疗保健专业人员对该人群自我管理和自我管理支持的看法。

方法

我们对荷兰27名经过有目的抽样的医学专家(n = 6)、专科护士(n = 6)、全科医生(n = 8)和家庭护理/临终关怀护士(n = 7)进行了定性访谈。使用主题分析法对访谈记录进行分析。

结果

医疗保健专业人员认为晚期癌症患者的自我管理是多样的、动态的且具有挑战性的。他们在为该人群提供自我管理支持时采用指导、协作和咨询的角色。虽然有些专业人员更喜欢或倾向于一种角色,但其他人表示会根据情况转换角色。

结论

与晚期癌症患者一样,医疗保健专业人员对该人群的自我管理和自我管理支持的看法和方法也各不相同。因此,在某些情况下,指导、协作和咨询的自我管理支持角色都将是有用的。

实践意义

医疗保健专业人员可以通过了解自己的观点并将这些观点清晰地传达给患者和同事来支持自我管理。自我管理支持方面的教育应包括自我反思技能,并讨论自我管理与专业护理之间的关系。

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