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Exploring narratives of resilience among seven males living with spinal cord injury: a qualitative study.探索 7 名男性脊髓损伤患者韧性叙事:一项定性研究。
BMC Psychol. 2018 Jan 4;6(1):1. doi: 10.1186/s40359-017-0211-2.
4
The impact of spinal cord injury on the quality of life of primary family caregivers: a literature review.脊髓损伤对主要家庭照顾者生活质量的影响:一项文献综述。
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10
The meaning of self-care in persons with cervical spinal cord injury in Japan: a qualitative study.日本颈脊髓损伤患者自我护理的意义:一项定性研究。
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探索脊髓损伤患者恢复自主性的促进因素:一项定性研究。

Exploring Facilitators of Regaining Autonomy in People with Spinal Cord Injury: A Qualitative Study.

作者信息

Farahani Moloud Farmahini, Khankeh Hamid Reza, Hosseini Mohammadali, Dalvandi Asghar, NorouziTabrizi Kian

机构信息

Department of Nursing, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran.

Research Center in Emergency and Health, University of Social Welfare and Rehabilitation, Tehran, Iran.

出版信息

Iran J Nurs Midwifery Res. 2021 Mar 5;26(2):154-161. doi: 10.4103/ijnmr.IJNMR_25_20. eCollection 2021 Mar-Apr.

DOI:10.4103/ijnmr.IJNMR_25_20
PMID:34036064
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8132859/
Abstract

BACKGROUND

One of the most important aims of rehabilitation in Spinal Cord Injuries (SCI) is regaining autonomy, which can affect individuals' Quality of Life (QOL). This study was conducted to understand the experiences of individuals with SCI in terms of regaining autonomy during transition from hospital to community.

MATERIALS AND METHODS

The present study was conducted using a qualitative research design. In this study, 15 semi-structured, in-depth interviews were conducted with individuals with SCI in Spinal Cord Injury (SCI) Association of Arak, Iran, from June 2018 to May 2019. The interviews were analyzed using the conventional content analysis method.

RESULTS

Data analysis emerged four core categories of "self-management" (adaptation to a new life, self-care, responsibility, and seeking information), "social support" (family and friends' support, health care providers' support, and peer support), "access to facilities and resources" (home modification, use of various rehabilitation techniques, and use of mobility equipment), and "spiritual and religious beliefs" (believing in divine destiny and performance of religious rites).

CONCLUSIONS

The present study showed that several factors influenced the regaining of autonomy in individuals with SCI. It is important to consider the impact of these factors during transition from hospital to community. Health service providers can use the findings of this research to help these individuals regain their autonomy.

摘要

背景

脊髓损伤(SCI)康复的最重要目标之一是恢复自主能力,这会影响个体的生活质量(QOL)。本研究旨在了解脊髓损伤患者在从医院过渡到社区期间恢复自主能力方面的经历。

材料与方法

本研究采用定性研究设计。2018年6月至2019年5月,对伊朗阿拉克脊髓损伤协会的脊髓损伤患者进行了15次半结构化深度访谈。采用常规内容分析法对访谈进行分析。

结果

数据分析得出四个核心类别:“自我管理”(适应新生活、自我护理、责任和寻求信息)、“社会支持”(家人和朋友的支持、医疗保健提供者的支持和同伴支持)、“获得设施和资源”(家庭改造、使用各种康复技术和使用移动设备)以及“精神和宗教信仰”(相信神圣命运和进行宗教仪式)。

结论

本研究表明,几个因素影响脊髓损伤患者自主能力的恢复。在从医院过渡到社区的过程中考虑这些因素的影响很重要。卫生服务提供者可以利用本研究的结果来帮助这些个体恢复自主能力。