Deltra C. Muoki, PhD, APRN, AGNP-C, CMSRN, is Nurse Practitioner and Nursing Faculty, Nelda C. Stark College of Nursing, Texas Woman's University, Houston, and San Jacinto College, Houston, Texas.
Sandra Cesario, PhD, RNC, FAAN, is Professor, and PhD/DNP Program Coordinator, Houston Center, Nelda C. Stark College of Nursing, Texas Woman's University, Houston, Texas.
Gastroenterol Nurs. 2021;44(3):192-201. doi: 10.1097/SGA.0000000000000526.
Percutaneous endoscopic gastrostomy feeding tube placement is multifactorial and considered a lifesaving mechanism, which leads to a host of thoughts and feelings that affect the decision-making experience. As people live longer and the population ages, these decisions often involve the caregivers who have their own experience and therefore can result in caregiver burden and anxiety. A descriptive phenomenological study was conducted to describe and understand the caregiver's decision-making experience regarding percutaneous endoscopic gastrostomy feeding tube placement in community-dwelling adults. Edmund Husserl's philosophical underpinnings were utilized in conjunction with Colaizzi's (1978) method of data analysis to maintain the rigor of the study. Sixteen adult caregivers of patients from six rehabilitation and skilled nursing facilities were interviewed using a semistructured interview guide. The audio-recorded interviews were transcribed and thematic analysis was conducted. The study results yield four main themes: "Survival ... that was the determining factor"; "The doctor decided"; "More education ... just make sure they understand"; and "It makes me very scared." Implications for practice, policy, and future research are thoroughly discussed.
经皮内镜下胃造口管放置是多因素的，被认为是一种救生机制，这导致了一系列的想法和感受，影响了决策体验。随着人们寿命的延长和人口老龄化，这些决定往往涉及到有自己经验的照顾者，因此可能导致照顾者的负担和焦虑。本研究采用描述性现象学研究方法，旨在描述和理解社区居住的成年人中照顾者在经皮内镜下胃造口管放置方面的决策体验。本研究采用了埃德蒙·胡塞尔（Edmund Husserl）的哲学基础，并结合了科莱齐（Colaizzi）（1978）的数据分析方法，以保持研究的严谨性。研究采访了来自六家康复和熟练护理机构的 16 名成年患者照顾者，使用半结构化访谈指南进行了访谈。对录音访谈进行了转录，并进行了主题分析。研究结果得出了四个主要主题：“生存……这是决定性因素”；“医生决定”；“更多的教育……确保他们理解”；以及“这让我非常害怕”。本研究深入讨论了对实践、政策和未来研究的影响。
