中国接受家庭鼻饲管喂养患者的照顾者的体验：一项描述性定性研究。
The experience of family caregivers of patients receiving home nasogastric tube feeding in China: A descriptive qualitative study.
机构信息
Qilu Hospital, Shandong University, Jinan, China.
Shandong Provincial Hospital Affiliated to Shandong First Medical University, Jinan, China.
出版信息
J Hum Nutr Diet. 2022 Feb;35(1):14-22. doi: 10.1111/jhn.12908. Epub 2021 Jun 11.
BACKGROUND
The value of caregivers with respect to ensuring safety during home nasogastric tube (NGT) feeding is increasingly acknowledged. However, little attention has been given to the experience of caregivers.
METHODS
A qualitative descriptive design using semi-structured interviews via purposive sampling at a comprehensive hospital in China was employed. Family caregivers of patients with home NGT feeding were recruited. Interviews were recorded, transcribed verbatim and analysed qualitatively using inductive content analysis.
RESULTS
Thirteen family caregivers of patients with home NGT feeding were interviewed. Four main themes were generated: negative experience (uncertainty and ambivalence, transition gaps between hospitals and home care services), new role: adapting to the lifestyle (participating in decision-making, being responsible for everything, adjusting own life to NGT feeding), perceived benefit of caregiving (personal growth, development of positive attitudes and achievements) and expectations (expectations from continuity health system services, expectations from social support).
CONCLUSIONS
The present study highlights the vulnerability and perceived benefits embedded in the role of a family caregiver. Improving communication and standardising practices between home and hospitals should be considered.
背景
护理人员在确保家庭鼻胃管（NGT）喂养安全方面的价值越来越受到认可。然而，对于护理人员的经验却关注甚少。
方法
采用在中国一家综合性医院进行的半结构式访谈，通过目的抽样，采用定性描述性设计。招募了在家中接受 NGT 喂养的患者的家庭照顾者。访谈进行了录音、逐字转录，并使用归纳内容分析进行定性分析。
结果
对 13 名在家中接受 NGT 喂养的患者的家庭照顾者进行了访谈。产生了四个主要主题：负面体验（不确定性和矛盾心理、医院和家庭护理服务之间的过渡差距）、新角色：适应生活方式（参与决策、对一切负责、调整自己的生活以适应 NGT 喂养）、照顾的好处（个人成长、积极态度和成就的发展）和期望（对连续卫生系统服务的期望、对社会支持的期望）。
结论
本研究强调了家庭照顾者角色中所包含的脆弱性和感知益处。应考虑改善家庭和医院之间的沟通和规范实践。
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